Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam
<br><strong>Background: </strong>Approximately 1. 07 million people in Vietnam are infected with hepatitis C virus (HCV). To address this epidemic, the South East Asian Research Collaborative in Hepatitis (SEARCH) launched a 600-patient cohort study and two clinical trials, both in...
| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
Frontiers Media
2022
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| _version_ | 1826292453265637376 |
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| author | Nguyen Quoc, G Nguyen Le Thao, M Bao, A Nguyen Anh, N Vu Thi Tuong, V Nguyen Thi Ngoc, D Phan, L Phan Minh, T Lam Ngoc, T Nguyen Thanh, A Nguyen Anh, T Nguyen Nguyen Nhu, T Nguyen Thi, L Nguyen Thuy Thanh, V Nguyen Minh, H Nguyen Minh, T Do Thuy An, M Nguyen Tri, T Tran Thi, P Pham Hong, S Tran Thi, N Hoang Thai, A Duong Thi My, H Cooke, GS Chambers, M Van Nuil, JI |
| author_facet | Nguyen Quoc, G Nguyen Le Thao, M Bao, A Nguyen Anh, N Vu Thi Tuong, V Nguyen Thi Ngoc, D Phan, L Phan Minh, T Lam Ngoc, T Nguyen Thanh, A Nguyen Anh, T Nguyen Nguyen Nhu, T Nguyen Thi, L Nguyen Thuy Thanh, V Nguyen Minh, H Nguyen Minh, T Do Thuy An, M Nguyen Tri, T Tran Thi, P Pham Hong, S Tran Thi, N Hoang Thai, A Duong Thi My, H Cooke, GS Chambers, M Van Nuil, JI |
| author_sort | Nguyen Quoc, G |
| collection | OXFORD |
| description | <br><strong>Background: </strong>Approximately 1. 07 million people in Vietnam are infected with hepatitis C virus (HCV). To address this epidemic, the South East Asian Research Collaborative in Hepatitis (SEARCH) launched a 600-patient cohort study and two clinical trials, both investigating shortened treatment strategies for chronic HCV infection with direct-acting antiviral drugs. We conducted ethnographic research with a subset of trial participants and found that the majority were aware of HCV infection and its implications and were motivated to seek treatment. However, people who inject drugs (PWID), and other groups at risk for HCV were under-represented, although injecting drug use is associated with high rates of HCV.
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Material and Methods: </strong>We designed a community-based participatory research (CBPR) study to engage in dialogues surrounding HCV and other community-prioritized health issues with underserved groups at risk for HCV in Ho Chi Minh City. The project consists of three phases: situation analysis, CBPR implementation, and dissemination. In this paper, we describe the results of the first phase (i.e., the situation analysis) in which we conducted desk research and organized stakeholder mapping meetings with representatives from local non-government and community-based organizations where we used participatory research methods to identify and analyze key stakeholders working with underserved populations.
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Results: </strong>Twenty six institutions or groups working with the key underserved populations were identified. Insights about the challenges and dynamics of underserved communities were also gathered. Two working groups made up of representatives from the NGO and CBO level were formed.
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Discussion: </strong>Using the information provided by local key stakeholders to shape the project has helped us to build solid relationships, give the groups a sense of ownership from the early stages, and made the project more context specific. These steps are not only important preliminary steps for participatory studies but also for other research that takes place within the communities. |
| first_indexed | 2024-03-07T03:14:55Z |
| format | Journal article |
| id | oxford-uuid:b57b2584-03bf-41c8-b080-da22376220cc |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-07T03:14:55Z |
| publishDate | 2022 |
| publisher | Frontiers Media |
| record_format | dspace |
| spelling | oxford-uuid:b57b2584-03bf-41c8-b080-da22376220cc2022-03-27T04:33:43ZMapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, VietnamJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:b57b2584-03bf-41c8-b080-da22376220ccEnglishSymplectic ElementsFrontiers Media2022Nguyen Quoc, GNguyen Le Thao, MBao, ANguyen Anh, NVu Thi Tuong, VNguyen Thi Ngoc, DPhan, LPhan Minh, TLam Ngoc, TNguyen Thanh, ANguyen Anh, TNguyen Nguyen Nhu, TNguyen Thi, LNguyen Thuy Thanh, VNguyen Minh, HNguyen Minh, TDo Thuy An, MNguyen Tri, TTran Thi, PPham Hong, STran Thi, NHoang Thai, ADuong Thi My, HCooke, GSChambers, MVan Nuil, JI<br><strong>Background: </strong>Approximately 1. 07 million people in Vietnam are infected with hepatitis C virus (HCV). To address this epidemic, the South East Asian Research Collaborative in Hepatitis (SEARCH) launched a 600-patient cohort study and two clinical trials, both investigating shortened treatment strategies for chronic HCV infection with direct-acting antiviral drugs. We conducted ethnographic research with a subset of trial participants and found that the majority were aware of HCV infection and its implications and were motivated to seek treatment. However, people who inject drugs (PWID), and other groups at risk for HCV were under-represented, although injecting drug use is associated with high rates of HCV. <br><strong> Material and Methods: </strong>We designed a community-based participatory research (CBPR) study to engage in dialogues surrounding HCV and other community-prioritized health issues with underserved groups at risk for HCV in Ho Chi Minh City. The project consists of three phases: situation analysis, CBPR implementation, and dissemination. In this paper, we describe the results of the first phase (i.e., the situation analysis) in which we conducted desk research and organized stakeholder mapping meetings with representatives from local non-government and community-based organizations where we used participatory research methods to identify and analyze key stakeholders working with underserved populations. <br><strong> Results: </strong>Twenty six institutions or groups working with the key underserved populations were identified. Insights about the challenges and dynamics of underserved communities were also gathered. Two working groups made up of representatives from the NGO and CBO level were formed. <br><strong> Discussion: </strong>Using the information provided by local key stakeholders to shape the project has helped us to build solid relationships, give the groups a sense of ownership from the early stages, and made the project more context specific. These steps are not only important preliminary steps for participatory studies but also for other research that takes place within the communities. |
| spellingShingle | Nguyen Quoc, G Nguyen Le Thao, M Bao, A Nguyen Anh, N Vu Thi Tuong, V Nguyen Thi Ngoc, D Phan, L Phan Minh, T Lam Ngoc, T Nguyen Thanh, A Nguyen Anh, T Nguyen Nguyen Nhu, T Nguyen Thi, L Nguyen Thuy Thanh, V Nguyen Minh, H Nguyen Minh, T Do Thuy An, M Nguyen Tri, T Tran Thi, P Pham Hong, S Tran Thi, N Hoang Thai, A Duong Thi My, H Cooke, GS Chambers, M Van Nuil, JI Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam |
| title | Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam |
| title_full | Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam |
| title_fullStr | Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam |
| title_full_unstemmed | Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam |
| title_short | Mapping for engagement: setting up a community based participatory research project to reach underserved communities at risk for hepatitis C in Ho Chi Minh City, Vietnam |
| title_sort | mapping for engagement setting up a community based participatory research project to reach underserved communities at risk for hepatitis c in ho chi minh city vietnam |
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