Informed consent in genomic research and biobanking: Taking feedback of findings seriously
Genomic research and biobanking present several ethical, social and cultural challenges, particularly when conducted in settings with limited scientific research capacity. One of these challenges is determining the model of consent that should support the sharing of human biological samples and data...
Autori principali: | Tindana, P, de Vries, J, Debpuur, C, Rutakumwa, R, Mweemba, O, Seeley, J, Parker, M |
---|---|
Natura: | Journal article |
Lingua: | English |
Pubblicazione: |
Taylor and Francis
2020
|
Documenti analoghi
Documenti analoghi
-
What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda
di: Rutakumwa, R, et al.
Pubblicazione: (2019) -
Use of broad consent and related procedures in genomics research: perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia
di: Mweemba, O, et al.
Pubblicazione: (2019) -
‘It is an entrustment’: Broad consent for genomic research and biobanks in sub-Saharan Africa
di: Tindana, P, et al.
Pubblicazione: (2017) -
Developing the science and methods of community engagement for genomic research and biobanking in Africa
di: Tindana, P, et al.
Pubblicazione: (2017) -
Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.
di: Tindana, P, et al.
Pubblicazione: (2012)