Enhancing primary care support for informal carers: A scoping study with professional stakeholders

Informal carers (i.e. people who provide unpaid care to family and/or friends) are crucial in supporting people with long‐term conditions. Caring negatively impacts on carers’ health and experiences of health services. Internationally and nationally, policies, legislation, professional guidance and...

Ful tanımlama

Detaylı Bibliyografya
Asıl Yazarlar: Peters, M, Rand, S, Fitzpatrick, R
Materyal Türü: Journal article
Dil:English
Baskı/Yayın Bilgisi: Wiley 2019
_version_ 1826295708017229824
author Peters, M
Rand, S
Fitzpatrick, R
author_facet Peters, M
Rand, S
Fitzpatrick, R
author_sort Peters, M
collection OXFORD
description Informal carers (i.e. people who provide unpaid care to family and/or friends) are crucial in supporting people with long‐term conditions. Caring negatively impacts on carers’ health and experiences of health services. Internationally and nationally, policies, legislation, professional guidance and research advocate for health and care services to do more to support carers. This study explored the views of health and social care providers, commissioners and policy makers about the role and scope for strengthening health service support for carers. Twenty‐four semi‐structured interviews, with 25 participants were conducted, audio‐recorded, transcribed verbatim and analysed by thematic analysis. Three main themes emerged: (a) identifying carers, (b) carer support, and (c) assessing and addressing carer needs. Primary care, and other services, were seen as not doing enough for carers but having an important role in identifying and supporting carers. Two issues with carer identification were described, first people not self‐identifying as carers and second most services not being proactive in identifying carers. Participants thought that carer needs should be supported by primary care in collaboration with other health services, social care and the voluntary sector. Concerns were raised about primary care, which is under enormous strain, being asked to take on yet another task. There was a clear message that it was only useful to involve primary care in identifying carers and their needs, if benefit could be achieved through direct benefits such as better provision of support to the carer or indirect benefit such as better recognition of the carer role. This study highlights that more could be done to address carers’ needs through primary care in close collaboration with other health and care services. The findings indicate the need for pilots and experiments to develop the evidence base. Given the crucial importance of carers, such studies should be a high priority.
first_indexed 2024-03-07T04:05:11Z
format Journal article
id oxford-uuid:c5e6c156-c57f-4f57-ab92-d50a7f2ff6ef
institution University of Oxford
language English
last_indexed 2024-03-07T04:05:11Z
publishDate 2019
publisher Wiley
record_format dspace
spelling oxford-uuid:c5e6c156-c57f-4f57-ab92-d50a7f2ff6ef2022-03-27T06:34:28ZEnhancing primary care support for informal carers: A scoping study with professional stakeholdersJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:c5e6c156-c57f-4f57-ab92-d50a7f2ff6efEnglishSymplectic Elements at OxfordWiley2019Peters, MRand, SFitzpatrick, RInformal carers (i.e. people who provide unpaid care to family and/or friends) are crucial in supporting people with long‐term conditions. Caring negatively impacts on carers’ health and experiences of health services. Internationally and nationally, policies, legislation, professional guidance and research advocate for health and care services to do more to support carers. This study explored the views of health and social care providers, commissioners and policy makers about the role and scope for strengthening health service support for carers. Twenty‐four semi‐structured interviews, with 25 participants were conducted, audio‐recorded, transcribed verbatim and analysed by thematic analysis. Three main themes emerged: (a) identifying carers, (b) carer support, and (c) assessing and addressing carer needs. Primary care, and other services, were seen as not doing enough for carers but having an important role in identifying and supporting carers. Two issues with carer identification were described, first people not self‐identifying as carers and second most services not being proactive in identifying carers. Participants thought that carer needs should be supported by primary care in collaboration with other health services, social care and the voluntary sector. Concerns were raised about primary care, which is under enormous strain, being asked to take on yet another task. There was a clear message that it was only useful to involve primary care in identifying carers and their needs, if benefit could be achieved through direct benefits such as better provision of support to the carer or indirect benefit such as better recognition of the carer role. This study highlights that more could be done to address carers’ needs through primary care in close collaboration with other health and care services. The findings indicate the need for pilots and experiments to develop the evidence base. Given the crucial importance of carers, such studies should be a high priority.
spellingShingle Peters, M
Rand, S
Fitzpatrick, R
Enhancing primary care support for informal carers: A scoping study with professional stakeholders
title Enhancing primary care support for informal carers: A scoping study with professional stakeholders
title_full Enhancing primary care support for informal carers: A scoping study with professional stakeholders
title_fullStr Enhancing primary care support for informal carers: A scoping study with professional stakeholders
title_full_unstemmed Enhancing primary care support for informal carers: A scoping study with professional stakeholders
title_short Enhancing primary care support for informal carers: A scoping study with professional stakeholders
title_sort enhancing primary care support for informal carers a scoping study with professional stakeholders
work_keys_str_mv AT petersm enhancingprimarycaresupportforinformalcarersascopingstudywithprofessionalstakeholders
AT rands enhancingprimarycaresupportforinformalcarersascopingstudywithprofessionalstakeholders
AT fitzpatrickr enhancingprimarycaresupportforinformalcarersascopingstudywithprofessionalstakeholders