Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design

Objectives: To evaluate an accelerated form of experience-based co-design (EBCD), a type of participatory action research in which patients and staff work together to improve quality; to observe how acceleration affected the process and outcomes of the intervention. Methods: An ethnographic process...

Full description

Bibliographic Details
Main Authors: Locock, L, Robert, G, Boaz, A, Vougioukalou, S, Shuldham, C, Fielden, J, Ziebland, S, Gager, M, Tollyfield, R, Pearcey, J
Format: Journal article
Language:English
Published: 2014
Subjects:
_version_ 1826296083999883264
author Locock, L
Robert, G
Boaz, A
Vougioukalou, S
Shuldham, C
Fielden, J
Ziebland, S
Gager, M
Tollyfield, R
Pearcey, J
author_facet Locock, L
Robert, G
Boaz, A
Vougioukalou, S
Shuldham, C
Fielden, J
Ziebland, S
Gager, M
Tollyfield, R
Pearcey, J
author_sort Locock, L
collection OXFORD
description Objectives: To evaluate an accelerated form of experience-based co-design (EBCD), a type of participatory action research in which patients and staff work together to improve quality; to observe how acceleration affected the process and outcomes of the intervention. Methods: An ethnographic process evaluation of an adapted form of EBCD was conducted, including observations, interviews, questionnaires and documentary analysis. Whilst retaining all components of EBCD, the adapted approach replaced local patient interviews with secondary analysis of a national archive of patient experience narratives to create national trigger films; shortened the timeframe; and employed local improvement facilitators. It was tested in intensive care and lung cancer in two English National Health Service (NHS) hospitals. A total of 96 clinical staff (primarily nursing and medical), and 63 patients and family members participated in co-design activities. Results: The accelerated approach proved acceptable to staff and patients; using films of national rather than local narratives did not adversely affect local NHS staff engagement, and may have made the process less threatening or challenging. Local patients felt the national films generally reflected important themes although a minority felt they were more negative than their own experience. However, they served their purpose of ‘triggering’ discussion between patients and staff, and the resulting 48 co-design (improvement) activities across the four pathways were similar to those in EBCD, but achieved more quickly and at lower cost. Conclusions: Accelerated EBCD offers a rigorous and relatively cost-effective patient-centered quality improvement approach.
first_indexed 2024-03-07T04:10:54Z
format Journal article
id oxford-uuid:c7c69525-a97e-4ae1-81a2-0de446339a0b
institution University of Oxford
language English
last_indexed 2024-03-07T04:10:54Z
publishDate 2014
record_format dspace
spelling oxford-uuid:c7c69525-a97e-4ae1-81a2-0de446339a0b2022-03-27T06:47:44ZUsing a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-designJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:c7c69525-a97e-4ae1-81a2-0de446339a0bHealth and health policyEnglishOxford University Research Archive - Valet2014Locock, LRobert, GBoaz, AVougioukalou, SShuldham, CFielden, JZiebland, SGager, MTollyfield, RPearcey, JObjectives: To evaluate an accelerated form of experience-based co-design (EBCD), a type of participatory action research in which patients and staff work together to improve quality; to observe how acceleration affected the process and outcomes of the intervention. Methods: An ethnographic process evaluation of an adapted form of EBCD was conducted, including observations, interviews, questionnaires and documentary analysis. Whilst retaining all components of EBCD, the adapted approach replaced local patient interviews with secondary analysis of a national archive of patient experience narratives to create national trigger films; shortened the timeframe; and employed local improvement facilitators. It was tested in intensive care and lung cancer in two English National Health Service (NHS) hospitals. A total of 96 clinical staff (primarily nursing and medical), and 63 patients and family members participated in co-design activities. Results: The accelerated approach proved acceptable to staff and patients; using films of national rather than local narratives did not adversely affect local NHS staff engagement, and may have made the process less threatening or challenging. Local patients felt the national films generally reflected important themes although a minority felt they were more negative than their own experience. However, they served their purpose of ‘triggering’ discussion between patients and staff, and the resulting 48 co-design (improvement) activities across the four pathways were similar to those in EBCD, but achieved more quickly and at lower cost. Conclusions: Accelerated EBCD offers a rigorous and relatively cost-effective patient-centered quality improvement approach.
spellingShingle Health and health policy
Locock, L
Robert, G
Boaz, A
Vougioukalou, S
Shuldham, C
Fielden, J
Ziebland, S
Gager, M
Tollyfield, R
Pearcey, J
Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design
title Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design
title_full Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design
title_fullStr Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design
title_full_unstemmed Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design
title_short Using a national archive of patient experience narratives to promote local patient-centred quality improvement: an ethnographic process evaluation of ‘accelerated’ Experience-based Co-design
title_sort using a national archive of patient experience narratives to promote local patient centred quality improvement an ethnographic process evaluation of accelerated experience based co design
topic Health and health policy
work_keys_str_mv AT locockl usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT robertg usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT boaza usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT vougioukalous usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT shuldhamc usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT fieldenj usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT zieblands usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT gagerm usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT tollyfieldr usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign
AT pearceyj usinganationalarchiveofpatientexperiencenarrativestopromotelocalpatientcentredqualityimprovementanethnographicprocessevaluationofacceleratedexperiencebasedcodesign