Parfitian priority, gene therapy and disability

<p>Gene therapies for severe genetic disease are often highly expensive. In deciding whether or when to provide them, one ethical consideration is the benefit of treatment, relative to cost. But a separate consideration is concern for medical need, and the desire to benefit those who are worse...

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Autore principale: Wilkinson, D
Natura: Journal article
Lingua:English
Pubblicazione: Oxford University Press 2024
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author Wilkinson, D
author_facet Wilkinson, D
author_sort Wilkinson, D
collection OXFORD
description <p>Gene therapies for severe genetic disease are often highly expensive. In deciding whether or when to provide them, one ethical consideration is the benefit of treatment, relative to cost. But a separate consideration is concern for medical need, and the desire to benefit those who are worse off. The latter is a prioritarian concern. But how should we apply prioritarianism to decisions about gene therapy, particularly since such treatments might affect which individuals come into existence?</p> <p>That question is the main aim of this paper. I focus on a particular version of Prioritarianism articulated and defended by Derek Parfit. My primary aim is to explore how, if we were to adopt such an account, we should interpret and practically apply this in medical ethics. In doing so, I will assess how it fits with other elements of Parfit&rsquo;s philosophy. I defend a new &lsquo;time-relative&rsquo; version of priority.</p>
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spelling oxford-uuid:cabb649c-76ed-4e6e-ad26-f66b4f950ac92024-11-04T13:47:43ZParfitian priority, gene therapy and disabilityJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:cabb649c-76ed-4e6e-ad26-f66b4f950ac9EnglishSymplectic ElementsOxford University Press2024Wilkinson, D<p>Gene therapies for severe genetic disease are often highly expensive. In deciding whether or when to provide them, one ethical consideration is the benefit of treatment, relative to cost. But a separate consideration is concern for medical need, and the desire to benefit those who are worse off. The latter is a prioritarian concern. But how should we apply prioritarianism to decisions about gene therapy, particularly since such treatments might affect which individuals come into existence?</p> <p>That question is the main aim of this paper. I focus on a particular version of Prioritarianism articulated and defended by Derek Parfit. My primary aim is to explore how, if we were to adopt such an account, we should interpret and practically apply this in medical ethics. In doing so, I will assess how it fits with other elements of Parfit&rsquo;s philosophy. I defend a new &lsquo;time-relative&rsquo; version of priority.</p>
spellingShingle Wilkinson, D
Parfitian priority, gene therapy and disability
title Parfitian priority, gene therapy and disability
title_full Parfitian priority, gene therapy and disability
title_fullStr Parfitian priority, gene therapy and disability
title_full_unstemmed Parfitian priority, gene therapy and disability
title_short Parfitian priority, gene therapy and disability
title_sort parfitian priority gene therapy and disability
work_keys_str_mv AT wilkinsond parfitianprioritygenetherapyanddisability