From single biobanks to international networks: developing e-governance.

From single biobanks to international networks: developing e-governance.

Show other versions (1)

The future holds the possibility to link and network biobanks, existing biorepositories and reference databases for research purposes in ways that have not been possible before. There is the potential to develop 'research portals' that will enable researchers to access these research resou...

Fuld beskrivelse

Bibliografiske detaljer
Hovedforfatter:	Kaye, J
Format:	Journal article
Sprog:	English
Udgivet:	2011

Lignende værker

From single biobanks to international networks: developing e-governance
af: Kaye, J
Udgivet: (2011)

Biobanking networks - What are the governance challenges?
af: Kaye, J
Udgivet: (2009)

Governing biobanks: An introduction
af: Stranger, M, et al.
Udgivet: (2009)

Principles and practice in biobank governance
af: Kaye, J, et al.
Udgivet: (2009)

Governing UK Biobank: the importance of ensuring public trust.
af: Tutton, R, et al.
Udgivet: (2004)

Consent and research governance in biobanks: evidence from focus groups with medical researchers.
af: Whitley, E, et al.
Udgivet: (2012)

From consent to institutions: designing adaptive governance for genomic biobanks.
af: O'Doherty, K, et al.
Udgivet: (2011)

From consent to institutions: Designing adaptive governance for genomic biobanks
af: O'Doherty, K, et al.
Udgivet: (2011)

Biobank Governance: The Cautionary Tale of Taiwan Biobank
af: Shawn H.E. Harmon, et al.
Udgivet: (2018-08-01)

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
af: Kaye, J, et al.
Udgivet: (2016)

Building a foundation for Biobanking: the 2009 OECD Guidelines on Human Biobanks and Genetic Research Databases (HBGRDs)
af: Kaye, J
Udgivet: (2010)

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).
af: Kaye, J
Udgivet: (2010)

Embedding biobanks as tools for personalised medicine
af: Kaye, J
Udgivet: (2012)

Risk mapping for better governance in biobanking: the case of biobank.cy
af: Kaya Akyüz, et al.
Udgivet: (2024-06-01)

A call for global governance of biobanks
af: Haidan Chen, et al.

Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
af: Caulfield, T, et al.
Udgivet: (2009)

Personalized assent for pediatric biobanks
af: Giesbertz, N, et al.
Udgivet: (2016)

Mapping the regulatory space for genetic databases and biobanks in England and wales
af: Kaye, J, et al.
Udgivet: (2008)

Do we need a uniform regulatory system for biobanks across Europe?
af: Kaye, J
Udgivet: (2006)

Governance through scientism: Taiwan Biobank and public controversy
af: Wan-Ju Lee, et al.
Udgivet: (2022-10-01)

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era
af: Chalmers, D, et al.
Udgivet: (2016)

Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
af: Megan Prictor, et al.
Udgivet: (2018-09-01)

Equitable participation in biobanks: The risks and benefits of a "Dynamic Consent" approach
af: Prictor, M, et al.
Udgivet: (2018)

Returning results in biobank research: Global trends and solutions.
af: De Clercq, E, et al.
Udgivet: (2017)

National Center Biobank Network
af: Yosuke Omae, et al.
Udgivet: (2022-11-01)

Advancing good governance in data sharing and biobanking - international aspects [version 1; peer review: 2 approved]
af: Buddhika Fernando, et al.
Udgivet: (2019-11-01)

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants
af: Teare, H, et al.
Udgivet: (2015)

Mad scientists bend the frame of biobank governance in British Columbia
af: Heather L. Walmsley
Udgivet: (2009-01-01)

Community recommendations on biobank governance: Results from a deliberative community engagement in California.
af: Sarah M Dry, et al.
Udgivet: (2017-01-01)

Sample, data use and protection in biobanking in Europe: legal issues.
af: Zika, E, et al.
Udgivet: (2008)

From idea to implementation: the development of biobanking in Russia. The Cardiovascular Therapy and Prevention journal’s top contributing institutions: National Association of Biobanks and Biobanking Specialists (NASBIO)
af: A. N. Meshkov, et al.
Udgivet: (2023-12-01)

The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks
af: Chiara Baldo, et al.
Udgivet: (2016-10-01)

A network database for the human biobank
af: Myles Axton
Udgivet: (2021-06-01)

The Quebec Respiratory Health Network Biobank
af: Sabrina Biardel, et al.
Udgivet: (2018-12-01)

Biobank Quality Management in the BBMRI.be Network
af: Loes Linsen, et al.
Udgivet: (2019-06-01)

Public trust and global biobank networks
af: Lisa Dive, et al.
Udgivet: (2020-08-01)

Common Data Model and Database System Development for the Korea Biobank Network
af: Soo-Jeong Ko, et al.
Udgivet: (2021-12-01)

Uppsala Biobank—the development of a biobank organization in a local, regional, and national setting
af: Anna Beskow
Udgivet: (2019-01-01)

ELSI challenges and strategies of national biobank infrastructures
af: Budin-Ljøne, I, et al.
Udgivet: (2012)

Biobank@VITO: Biobanking the General Population in Flanders
af: Rosette Van Den Heuvel, et al.
Udgivet: (2020-02-01)