The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature

<p><strong>Objective</strong> To systematically review the qualitative literature of the lived experience of people with a chronic headache disorder.</p> <p><strong>Background</strong> Chronic headaches affect 3%–4% of the population. The most common chroni...

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Main Authors: Nichols, VP, Ellard, DR, Griffiths, FE, Kamal, A, Underwood, M, Taylor, SJC
Format: Journal article
Language:English
Published: BMJ 2017
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author Nichols, VP
Ellard, DR
Griffiths, FE
Kamal, A
Underwood, M
Taylor, SJC
author2 Taylor, SJC
author_facet Taylor, SJC
Nichols, VP
Ellard, DR
Griffiths, FE
Kamal, A
Underwood, M
Taylor, SJC
author_sort Nichols, VP
collection OXFORD
description <p><strong>Objective</strong> To systematically review the qualitative literature of the lived experience of people with a chronic headache disorder.</p> <p><strong>Background</strong> Chronic headaches affect 3%–4% of the population. The most common chronic headache disorders are chronic migraine, chronic tension-type headache and medication overuse headache. We present a systematic review and meta-ethnographic synthesis of the lived experience of people with chronic headache.</p> <p><strong>Methods</strong> We searched seven electronic databases, hand-searched nine journals and used a modified Critical Appraisal Skills Programme checklist to appraise study quality. Following thematic analysis we synthesised the data using a meta-ethnographic approach.</p> <p><strong>Results</strong> We identified 3586 unique citations; full texts were examined for 86 studies and 4 were included in the review. Included studies differed in their foci: exploring, patient-centred outcomes, chronic headache as a socially invisible disease, psychological processes mediating impaired quality of life, and the process of medication overuse. Initial thematic analysis and subsequent synthesis gave three overarching themes: ‘headache as a driver of behaviour’ (directly and indirectly), ‘the spectre of headache’ and ‘strained relationships’.</p> <p><strong>Conclusion</strong> This meta-synthesis of published qualitative evidence demonstrates that chronic headaches have a profound effect on people’s lives, showing similarities with other pain conditions. There were insufficient data to explore the similarities and differences between different chronic headache disorders.</p>
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spelling oxford-uuid:e042336c-93be-45d1-b1e1-febc1fba38802022-03-27T09:45:52ZThe lived experience of chronic headache: a systematic review and synthesis of the qualitative literatureJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:e042336c-93be-45d1-b1e1-febc1fba3880EnglishSymplectic Elements at OxfordBMJ2017Nichols, VPEllard, DRGriffiths, FEKamal, AUnderwood, MTaylor, SJCTaylor, SJC <p><strong>Objective</strong> To systematically review the qualitative literature of the lived experience of people with a chronic headache disorder.</p> <p><strong>Background</strong> Chronic headaches affect 3%–4% of the population. The most common chronic headache disorders are chronic migraine, chronic tension-type headache and medication overuse headache. We present a systematic review and meta-ethnographic synthesis of the lived experience of people with chronic headache.</p> <p><strong>Methods</strong> We searched seven electronic databases, hand-searched nine journals and used a modified Critical Appraisal Skills Programme checklist to appraise study quality. Following thematic analysis we synthesised the data using a meta-ethnographic approach.</p> <p><strong>Results</strong> We identified 3586 unique citations; full texts were examined for 86 studies and 4 were included in the review. Included studies differed in their foci: exploring, patient-centred outcomes, chronic headache as a socially invisible disease, psychological processes mediating impaired quality of life, and the process of medication overuse. Initial thematic analysis and subsequent synthesis gave three overarching themes: ‘headache as a driver of behaviour’ (directly and indirectly), ‘the spectre of headache’ and ‘strained relationships’.</p> <p><strong>Conclusion</strong> This meta-synthesis of published qualitative evidence demonstrates that chronic headaches have a profound effect on people’s lives, showing similarities with other pain conditions. There were insufficient data to explore the similarities and differences between different chronic headache disorders.</p>
spellingShingle Nichols, VP
Ellard, DR
Griffiths, FE
Kamal, A
Underwood, M
Taylor, SJC
The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature
title The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature
title_full The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature
title_fullStr The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature
title_full_unstemmed The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature
title_short The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature
title_sort lived experience of chronic headache a systematic review and synthesis of the qualitative literature
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