Cultivating participatory processes in self-harm app development: a case-study and working methodology

<p><strong>Background:</strong> Self-harm and suicide related behaviours are increasing in young people, and clinical support is not adequately meeting needs. Improved approaches to assessment and the clinical management of self-harm will result from co-design processes and include...

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Main Authors: Babbage, CM, Lockwood, J, Roberts, L, Mendes, J, Greenhalgh, C, Willingham, L-P, Wokomah, E, Woodcock, R, Slovak, P, Townsend, E
Other Authors: Digital Youth research team
Format: Journal article
Language:English
Published: Wiley 2024
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author Babbage, CM
Lockwood, J
Roberts, L
Mendes, J
Greenhalgh, C
Willingham, L-P
Wokomah, E
Woodcock, R
Slovak, P
Townsend, E
author2 Digital Youth research team
author_facet Digital Youth research team
Babbage, CM
Lockwood, J
Roberts, L
Mendes, J
Greenhalgh, C
Willingham, L-P
Wokomah, E
Woodcock, R
Slovak, P
Townsend, E
author_sort Babbage, CM
collection OXFORD
description <p><strong>Background:</strong> Self-harm and suicide related behaviours are increasing in young people, and clinical support is not adequately meeting needs. Improved approaches to assessment and the clinical management of self-harm will result from co-design processes and include greater shared decision-making between young people and practitioners. The CaTS-App (an adapted digital version of the existing Card Sort Task for Self-harm research tool) aims to facilitate a collaborative understanding of adolescent selfharm and support decision-making within clinical settings. The co-development of a digital, clinical tool which meets the needs of multiple stakeholders requires careful consideration.</p> <p><strong>Methods:</strong> We present a case-study describing the participatory aspects of the development of the CaTS-App, which included comprehensive patient involvement, research activities and co-production with diverse young people aged 17-24 with lived experience of self-harm. We share our processes and activities to deliver safe, engaging, sustainable, ethical and responsible participatory practice and cocreated knowledge, in the co-development of the CaTS-APP.</p> <p><strong>Results:</strong> Activities spanned a 48-month period in both face-to-face and online settings. Example processes and activities are provided in narrative, tabular and diagrammatic form, alongside discussion of the rationale for choices made. A summary methodology is also shared to stimulate continued discussion and development of participatory approaches in digital mental health.</p> <p><strong>Conclusions:</strong> The paper contributes important insight and practical detail for the delivery of genuine participatory processes in digital mental health development when working wit a population who may be considered vulnerable.</p>
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spelling oxford-uuid:e30906dd-8848-48a7-9235-9a8dd37cefaa2024-11-18T11:37:02ZCultivating participatory processes in self-harm app development: a case-study and working methodologyJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:e30906dd-8848-48a7-9235-9a8dd37cefaaEnglishSymplectic ElementsWiley2024Babbage, CMLockwood, JRoberts, LMendes, JGreenhalgh, CWillingham, L-PWokomah, EWoodcock, RSlovak, PTownsend, E Digital Youth research team<p><strong>Background:</strong> Self-harm and suicide related behaviours are increasing in young people, and clinical support is not adequately meeting needs. Improved approaches to assessment and the clinical management of self-harm will result from co-design processes and include greater shared decision-making between young people and practitioners. The CaTS-App (an adapted digital version of the existing Card Sort Task for Self-harm research tool) aims to facilitate a collaborative understanding of adolescent selfharm and support decision-making within clinical settings. The co-development of a digital, clinical tool which meets the needs of multiple stakeholders requires careful consideration.</p> <p><strong>Methods:</strong> We present a case-study describing the participatory aspects of the development of the CaTS-App, which included comprehensive patient involvement, research activities and co-production with diverse young people aged 17-24 with lived experience of self-harm. We share our processes and activities to deliver safe, engaging, sustainable, ethical and responsible participatory practice and cocreated knowledge, in the co-development of the CaTS-APP.</p> <p><strong>Results:</strong> Activities spanned a 48-month period in both face-to-face and online settings. Example processes and activities are provided in narrative, tabular and diagrammatic form, alongside discussion of the rationale for choices made. A summary methodology is also shared to stimulate continued discussion and development of participatory approaches in digital mental health.</p> <p><strong>Conclusions:</strong> The paper contributes important insight and practical detail for the delivery of genuine participatory processes in digital mental health development when working wit a population who may be considered vulnerable.</p>
spellingShingle Babbage, CM
Lockwood, J
Roberts, L
Mendes, J
Greenhalgh, C
Willingham, L-P
Wokomah, E
Woodcock, R
Slovak, P
Townsend, E
Cultivating participatory processes in self-harm app development: a case-study and working methodology
title Cultivating participatory processes in self-harm app development: a case-study and working methodology
title_full Cultivating participatory processes in self-harm app development: a case-study and working methodology
title_fullStr Cultivating participatory processes in self-harm app development: a case-study and working methodology
title_full_unstemmed Cultivating participatory processes in self-harm app development: a case-study and working methodology
title_short Cultivating participatory processes in self-harm app development: a case-study and working methodology
title_sort cultivating participatory processes in self harm app development a case study and working methodology
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