Rapid challenges: ethics and genomic neonatal intensive care

Rapid challenges: ethics and genomic neonatal intensive care

Neonatal intensive care units (NICUs) are a priority implementation area for genomic medicine. Rapid genomic testing in the NICU is expected to be genomic medicine’s ‘critical application’, providing such clear benefits that it drives the adoption of genomics more broadly. Studies from multiple cent...

Deskribapen osoa

Xehetasun bibliografikoak
Egile Nagusiak:	Gyngell, C, Stark, Z, Newsond, A, Wilkinson, D, Savulescu, J
Formatua:	Journal article
Argitaratua:	American Academy of Pediatrics 2019

Antzeko izenburuak

Intensive care clinicians’ perspectives on ethical challenges raised by rapid genomic testing in critically ill infants
nork: Poogoda, S, et al.
Argitaratua: (2023)

Intensive Care Clinicians’ Perspectives on Ethical Challenges Raised by Rapid Genomic Testing in Critically Ill Infants
nork: Sachini Poogoda, et al.
Argitaratua: (2023-05-01)

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nork: Katie Arkell, et al.
Argitaratua: (2023-05-01)

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nork: Gyngell, C, et al.
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Ethics of genomic passports: should the genetically resistant be exempted from lockdowns and quarantines?
nork: Gyngell, C, et al.
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nork: Gyngell, C, et al.
Argitaratua: (2021)

Ethically utilising COVID-19 host-genomic data
nork: Christopher Gyngell, et al.
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The Intensive Care Lifeboat: a survey of lay attitudes to rationing dilemmas in neonatal intensive care
nork: Arora, C, et al.
Argitaratua: (2016)

The ethics of germline gene editing
nork: Gyngell, C, et al.
Argitaratua: (2016)

Genomic intensive care: should we perform genome testing in critically ill newborns?
nork: Wilkinson, D, et al.
Argitaratua: (2015)

From public preferences to ethical policy
nork: Savulescu, J, et al.
Argitaratua: (2019)

Ethical issues in neonatal intensive care
nork: Marcello M. Orzalesi, et al.
Argitaratua: (2011-01-01)

The ethics of human brain organoid transplantation in animals
nork: Kataoka, M, et al.
Argitaratua: (2023)

Ethical challenges in the neonatal intensive care units: perceptions of physicians and nurses; an Iranian experience
nork: Maliheh Kadivar, et al.
Argitaratua: (2016-02-01)

Expensive care? Resource-based thresholds for potentially inappropriate treatment in intensive care
nork: Wilkinson, D, et al.
Argitaratua: (2018)

Utilization and Evaluation of Ethics Consultation Services in Neonatal Intensive Care
nork: Pia Göbert, et al.
Argitaratua: (2024-11-01)

A costly separation between withdrawing and withholding treatment in intensive care.
nork: Wilkinson, D, et al.
Argitaratua: (2014)

Genome editing, Goldilocks and polygenic risk scores
nork: Gyngell, C, et al.
Argitaratua: (2019)

Ethical analysis of the first porcine cardiac xenotransplantation
nork: Gyngell, C, et al.
Argitaratua: (2024)

Moving from ‘fully’ to ‘appropriately’ informed consent in genomics: the PROMICE framework
nork: Koplin, J, et al.
Argitaratua: (2022)

Rationing potentially inappropriate treatment in newborn intensive care in developed countries
nork: Wilkinson, D, et al.
Argitaratua: (2017)

Rationing potentially inappropriate treatment in newborn intensive care in developed countries
nork: Wilkinson, D, et al.
Argitaratua: (2017)

Heritable polygenic editing: the next frontier in genomic medicine?
nork: Visscher, PM, et al.
Argitaratua: (2025)

The structure of ethics review: expert ethics committees and the challenge of voluntary research euthanasia.
nork: Savulescu, J
Argitaratua: (2017)

Palliative Care in Neonatal Intensive Care Units: Challenges and Solutions
nork: Naiire Salmani, et al.
Argitaratua: (2018-05-01)

Non-invasive prenatal testing for ‘non-medical’ traits: ensuring consistency in ethical decision-making
nork: Bowman-Smart, H, et al.
Argitaratua: (2021)

End of life care over four decades in a quaternary neonatal intensive care unit
nork: Barry, A, et al.
Argitaratua: (2022)

After Charlie Gard: ethically ensuring access to innovative treatment
nork: Wilkinson, D, et al.
Argitaratua: (2017)

The technology, opportunities, and challenges of Synthetic Biological Intelligence
nork: Kagan, BJ, et al.
Argitaratua: (2023)

The ethics of human life extension: the second argument from evolution
nork: Gyngell, C
Argitaratua: (2015)

Non-Genetic Healthcare Providers’ Experiences and Perspectives with Rapid Genome-Wide Sequencing in Canadian Neonatal Intensive Care Units
nork: Lauren Piers, et al.
Argitaratua: (2024-07-01)

Conjoined twins – philosophical problems and ethical challenges
nork: Savulescu, J, et al.
Argitaratua: (2015)

The Medical Case for Gene Editing
nork: Gyngell, C, et al.
Argitaratua: (2016)

Promoting biodiversity
nork: Savulescu, J, et al.
Argitaratua: (2016)

Philosophical medical ethics: more necessary than ever
nork: Savulescu, J, et al.
Argitaratua: (2018)

Equality or utility? Ethics and law of rationing ventilators
nork: Savulescu, J, et al.
Argitaratua: (2020)

Queue questions: ethics of COVID-19 vaccine prioritization
nork: Giubilini, A, et al.
Argitaratua: (2021)

Neonatal Intensive Care
nork: Lyn Acres
Argitaratua: (1981-09-01)

“We’ve opened pandora’s box, haven’t we?” clinical geneticists’ views on ethical aspects of genomic testing in neonatal intensive care
nork: Arsov T
Argitaratua: (2023-03-01)

Is mandatory elective single embryo transfer ethically justified
nork: Tremellen, K, et al.
Argitaratua: (2016)