Rapid challenges: ethics and genomic neonatal intensive care

Rapid challenges: ethics and genomic neonatal intensive care

Neonatal intensive care units (NICUs) are a priority implementation area for genomic medicine. Rapid genomic testing in the NICU is expected to be genomic medicine’s ‘critical application’, providing such clear benefits that it drives the adoption of genomics more broadly. Studies from multiple cent...

Bibliografske podrobnosti
Main Authors:	Gyngell, C, Stark, Z, Newsond, A, Wilkinson, D, Savulescu, J
Format:	Journal article
Izdano:	American Academy of Pediatrics 2019

Podobne knjige/članki

Intensive care clinicians’ perspectives on ethical challenges raised by rapid genomic testing in critically ill infants
od: Poogoda, S, et al.
Izdano: (2023)

Intensive Care Clinicians’ Perspectives on Ethical Challenges Raised by Rapid Genomic Testing in Critically Ill Infants
od: Sachini Poogoda, et al.
Izdano: (2023-05-01)

Rapid Genomic Testing in Intensive Care: Health Professionals’ Perspectives on Ethical Challenges
od: Katie Arkell, et al.
Izdano: (2023-05-01)

Drugs, genes and screens: the ethics of preventing and treating spinal muscular atrophy
od: Gyngell, C, et al.
Izdano: (2019)

Ethics of genomic passports: should the genetically resistant be exempted from lockdowns and quarantines?
od: Gyngell, C, et al.
Izdano: (2021)

Ethically utilising COVID-19 host-genomic data
od: Gyngell, C, et al.
Izdano: (2021)

The Intensive Care Lifeboat: a survey of lay attitudes to rationing dilemmas in neonatal intensive care
od: Arora, C, et al.
Izdano: (2016)

The ethics of germline gene editing
od: Gyngell, C, et al.
Izdano: (2016)

Genomic intensive care: should we perform genome testing in critically ill newborns?
od: Wilkinson, D, et al.
Izdano: (2015)

From public preferences to ethical policy
od: Savulescu, J, et al.
Izdano: (2019)

Ethical issues in neonatal intensive care
od: Marcello M. Orzalesi, et al.
Izdano: (2011-01-01)

The ethics of human brain organoid transplantation in animals
od: Kataoka, M, et al.
Izdano: (2023)

Expensive care? Resource-based thresholds for potentially inappropriate treatment in intensive care
od: Wilkinson, D, et al.
Izdano: (2018)

Utilization and Evaluation of Ethics Consultation Services in Neonatal Intensive Care
od: Pia Göbert, et al.
Izdano: (2024-11-01)

A costly separation between withdrawing and withholding treatment in intensive care.
od: Wilkinson, D, et al.
Izdano: (2014)

Genome editing, Goldilocks and polygenic risk scores
od: Gyngell, C, et al.
Izdano: (2019)

Moving from ‘fully’ to ‘appropriately’ informed consent in genomics: the PROMICE framework
od: Koplin, J, et al.
Izdano: (2022)

Ethical analysis of the first porcine cardiac xenotransplantation
od: Gyngell, C, et al.
Izdano: (2024)

Rationing potentially inappropriate treatment in newborn intensive care in developed countries
od: Wilkinson, D, et al.
Izdano: (2017)

Rationing potentially inappropriate treatment in newborn intensive care in developed countries
od: Wilkinson, D, et al.
Izdano: (2017)

Heritable polygenic editing: the next frontier in genomic medicine?
od: Visscher, PM, et al.
Izdano: (2025)

The structure of ethics review: expert ethics committees and the challenge of voluntary research euthanasia.
od: Savulescu, J
Izdano: (2017)

End of life care over four decades in a quaternary neonatal intensive care unit
od: Barry, A, et al.
Izdano: (2022)

Non-invasive prenatal testing for ‘non-medical’ traits: ensuring consistency in ethical decision-making
od: Bowman-Smart, H, et al.
Izdano: (2021)

After Charlie Gard: ethically ensuring access to innovative treatment
od: Wilkinson, D, et al.
Izdano: (2017)

Non-Genetic Healthcare Providers’ Experiences and Perspectives with Rapid Genome-Wide Sequencing in Canadian Neonatal Intensive Care Units
od: Lauren Piers, et al.
Izdano: (2024-07-01)

The ethics of human life extension: the second argument from evolution
od: Gyngell, C
Izdano: (2015)

The technology, opportunities, and challenges of Synthetic Biological Intelligence
od: Kagan, BJ, et al.
Izdano: (2023)

Conjoined twins – philosophical problems and ethical challenges
od: Savulescu, J, et al.
Izdano: (2015)

Philosophical medical ethics: more necessary than ever
od: Savulescu, J, et al.
Izdano: (2018)

The Medical Case for Gene Editing
od: Gyngell, C, et al.
Izdano: (2016)

Promoting biodiversity
od: Savulescu, J, et al.
Izdano: (2016)

Equality or utility? Ethics and law of rationing ventilators
od: Savulescu, J, et al.
Izdano: (2020)

Queue questions: ethics of COVID-19 vaccine prioritization
od: Giubilini, A, et al.
Izdano: (2021)

Neonatal Intensive Care
od: Lyn Acres
Izdano: (1981-09-01)

“We’ve opened pandora’s box, haven’t we?” clinical geneticists’ views on ethical aspects of genomic testing in neonatal intensive care
od: Arsov T
Izdano: (2023-03-01)

The Changing Characteristics of Neonatal Sepsis in the Neonatal Intensive Care Unit: A Never-ending Challenge
od: Yuh-Jyh Lin
Izdano: (2009-06-01)

Implementation of rapid genomic sequencing in safety-net neonatal intensive care units: protocol for the VIrtual GenOme CenteR (VIGOR) proof-of-concept study
od: Pankaj Agrawal, et al.
Izdano: (2024-02-01)

Addressing ethical and laboratory challenges for initiation of a rapid whole genome sequencing program
od: Sabrina Malone Jenkins, et al.
Izdano: (2021-01-01)

Newborns in crisis: an outline of neonatal ethical dilemmas in humanitarian medicine
od: Schnall, J, et al.
Izdano: (2018)