‘I haven’t met them, I don’t have any trust in them. It just feels like a big unknown’: a qualitative study exploring the determinants of consent to use Human Fertilisation and Embryology Authority registry data in research
<p><strong>Objectives</strong> To explore why and how fertility patients decide to allow (or deny) the use of personal data held in the Human Fertilisation and Embryology Authority registry for linkage and research.</p> <p><strong>Design</strong> A qualitati...
Main Authors: | Carson, C, Hinton, L, Kurinczuk, J, Quigley, M |
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Format: | Journal article |
Published: |
BMJ Publishing Group
2019
|
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