From consent to institutions: Designing adaptive governance for genomic biobanks

From consent to institutions: Designing adaptive governance for genomic biobanks

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Biobanks are increasingly hailed as powerful tools to advance health research. The social and ethical challenges associated with the implementation and operation of biobanks are equally well-documented. One of the proposed solutions to these challenges involves trading off a reduction in the specifi...

Deskribapen osoa

Xehetasun bibliografikoak
Egile Nagusiak:	O'Doherty, K, Burgess, M, Edwards, K, Gallagher, R, Hawkins, A, Kaye, J, McCaffrey, V, Winickoff, D
Formatua:	Journal article
Hizkuntza:	English
Argitaratua:	2011

Antzeko izenburuak

From consent to institutions: designing adaptive governance for genomic biobanks.
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Argitaratua: (2011)

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Biobanks and Informed Consent
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Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
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"Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studies
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Equitable participation in biobanks: The risks and benefits of a "Dynamic Consent" approach
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‘It is an entrustment’: Broad consent for genomic research and biobanks in sub-Saharan Africa
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Informed consent in genomic research and biobanking: taking feedback of findings seriously
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Broad consent for biobanks is best – provided it is also deep
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Biobank Governance: The Cautionary Tale of Taiwan Biobank
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Developing model biobanking consent language: what matters to prospective participants?
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Formalising Requirements for a Biobank Scenario using a Logic for Consent and Revocation
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Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?
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Understanding the Public's Reservations about Broad Consent and Study-By-Study Consent for Donations to a Biobank: Results of a National Survey.
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Explosives, Genomics, and the Environment
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Risk mapping for better governance in biobanking: the case of biobank.cy
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Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
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Formalising Requirements for a Biobank Case Study Using a Logic for Consent and Revocation
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Broad consent for biobank research in South Africa - Towards an enabling ethico-legal framework
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Building a foundation for Biobanking: the 2009 OECD Guidelines on Human Biobanks and Genetic Research Databases (HBGRDs)
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Old as the hills
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