Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis
Background/Aims:TrueColours ulcerative colitis (TCUC) is a comprehensive web-based program that functions through email, providing direct links to questionnaires. Several similar programs are available, however patient perspectives are unexplored. Methods:A pilot study was conducted to determine fea...
| Main Authors: | , , , , , , , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
Korean Association for the Study of Intestinal Diseases
2019
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| _version_ | 1797101800335081472 |
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| author | Walsh, A Matini, L Hinds, C Sexton, V Brain, O Keshav, S Geddes, J Goodwin, G Collins, G Travis, S Peters, M |
| author_facet | Walsh, A Matini, L Hinds, C Sexton, V Brain, O Keshav, S Geddes, J Goodwin, G Collins, G Travis, S Peters, M |
| author_sort | Walsh, A |
| collection | OXFORD |
| description | Background/Aims:TrueColours ulcerative colitis (TCUC) is a comprehensive web-based program that functions through email, providing direct links to questionnaires. Several similar programs are available, however patient perspectives are unexplored. Methods:A pilot study was conducted to determine feasibility, usability and patient perceptions of real-time data collection (daily symptoms, fortnightly quality of life, 3 monthly outcomes). TCUC was adapted from a web-based program for patients with relapsing-remitting bipolar disorder, using validated UC indices. A semi-structured interview was developed and audio-recorded face-to-face interviews were conducted after 6 months of interaction with TCUC. Transcripts were coded in NVivo11, a qualitative data analysis software package. An inductive approach and thematic analysis was conducted. Results:TCUC was piloted in 66 patients for 6 months. Qualitative analysis currently defies statistical appraisal beyond "data saturation," even if it has more influence on clinical practice than quantitative data. A total of 28 face-to-face interviews were conducted. Six core themes emerged: awareness, control, decision-making, reassurance, communication and burden of treatment. There was a transcending overarching theme of patient empowerment, which cut across all aspects of the TCUC experience. Conclusions:Patient perception of the impact of real-time data collection was extremely positive. Patients felt empowered as a product of the self-monitoring format of TCUC, which may be a way of improving self-management of UC whilst also decreasing the burden on the individual and healthcare services. |
| first_indexed | 2024-03-07T05:57:01Z |
| format | Journal article |
| id | oxford-uuid:eadeb98a-9442-4e84-8c71-d6dac964b34a |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-07T05:57:01Z |
| publishDate | 2019 |
| publisher | Korean Association for the Study of Intestinal Diseases |
| record_format | dspace |
| spelling | oxford-uuid:eadeb98a-9442-4e84-8c71-d6dac964b34a2022-03-27T11:05:28ZReal-time data monitoring for ulcerative colitis: patient perception and qualitative analysisJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:eadeb98a-9442-4e84-8c71-d6dac964b34aEnglishSymplectic Elements at OxfordKorean Association for the Study of Intestinal Diseases2019Walsh, AMatini, LHinds, CSexton, VBrain, OKeshav, SGeddes, JGoodwin, GCollins, GTravis, SPeters, MBackground/Aims:TrueColours ulcerative colitis (TCUC) is a comprehensive web-based program that functions through email, providing direct links to questionnaires. Several similar programs are available, however patient perspectives are unexplored. Methods:A pilot study was conducted to determine feasibility, usability and patient perceptions of real-time data collection (daily symptoms, fortnightly quality of life, 3 monthly outcomes). TCUC was adapted from a web-based program for patients with relapsing-remitting bipolar disorder, using validated UC indices. A semi-structured interview was developed and audio-recorded face-to-face interviews were conducted after 6 months of interaction with TCUC. Transcripts were coded in NVivo11, a qualitative data analysis software package. An inductive approach and thematic analysis was conducted. Results:TCUC was piloted in 66 patients for 6 months. Qualitative analysis currently defies statistical appraisal beyond "data saturation," even if it has more influence on clinical practice than quantitative data. A total of 28 face-to-face interviews were conducted. Six core themes emerged: awareness, control, decision-making, reassurance, communication and burden of treatment. There was a transcending overarching theme of patient empowerment, which cut across all aspects of the TCUC experience. Conclusions:Patient perception of the impact of real-time data collection was extremely positive. Patients felt empowered as a product of the self-monitoring format of TCUC, which may be a way of improving self-management of UC whilst also decreasing the burden on the individual and healthcare services. |
| spellingShingle | Walsh, A Matini, L Hinds, C Sexton, V Brain, O Keshav, S Geddes, J Goodwin, G Collins, G Travis, S Peters, M Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis |
| title | Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis |
| title_full | Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis |
| title_fullStr | Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis |
| title_full_unstemmed | Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis |
| title_short | Real-time data monitoring for ulcerative colitis: patient perception and qualitative analysis |
| title_sort | real time data monitoring for ulcerative colitis patient perception and qualitative analysis |
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