Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40

OBJECTIVES: The purpose of the study was to assess the validity and reliability of a new disease specific measure of health-related quality of life for ALS/MND: the 40-item ALS Assessment Questionnaire (ALSAQ-40). DESIGN: We carried out a longitudinal postal survey. The two administrations of the qu...

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Main Authors: Jenkinson, C, Fitzpatrick, R, Brennan, C, Swash, M
Format: Journal article
Language:English
Published: 2000
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author Jenkinson, C
Fitzpatrick, R
Brennan, C
Swash, M
author_facet Jenkinson, C
Fitzpatrick, R
Brennan, C
Swash, M
author_sort Jenkinson, C
collection OXFORD
description OBJECTIVES: The purpose of the study was to assess the validity and reliability of a new disease specific measure of health-related quality of life for ALS/MND: the 40-item ALS Assessment Questionnaire (ALSAQ-40). DESIGN: We carried out a longitudinal postal survey. The two administrations of the questionnaire were separated by 3 months SAMPLE: Subjects were patients diagnosed with ALS/MND and registered with the UK MND Association. RESULTS: Dimensions of the ALSAQ-40 were shown to have high levels of internal reliability. The ALSAQ-40 was found to be sensitive to changes in self reported overall health state. CONCLUSION: We concluded that the ALSAQ-40 has high levels of reliability and validity and can be used as an outcome measure in studies evaluating new treatment regimes and therapies. (Amyot Lat Scler 1999; 1:33-40) © 1999 Informa UK Ltd All rights reserved: reproduction in whole or part not permitted.
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spelling oxford-uuid:f34dd398-3d1a-4060-bfa3-1824485c8fa62022-03-27T12:11:08ZEvidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40Journal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:f34dd398-3d1a-4060-bfa3-1824485c8fa6EnglishSymplectic Elements at Oxford2000Jenkinson, CFitzpatrick, RBrennan, CSwash, MOBJECTIVES: The purpose of the study was to assess the validity and reliability of a new disease specific measure of health-related quality of life for ALS/MND: the 40-item ALS Assessment Questionnaire (ALSAQ-40). DESIGN: We carried out a longitudinal postal survey. The two administrations of the questionnaire were separated by 3 months SAMPLE: Subjects were patients diagnosed with ALS/MND and registered with the UK MND Association. RESULTS: Dimensions of the ALSAQ-40 were shown to have high levels of internal reliability. The ALSAQ-40 was found to be sensitive to changes in self reported overall health state. CONCLUSION: We concluded that the ALSAQ-40 has high levels of reliability and validity and can be used as an outcome measure in studies evaluating new treatment regimes and therapies. (Amyot Lat Scler 1999; 1:33-40) © 1999 Informa UK Ltd All rights reserved: reproduction in whole or part not permitted.
spellingShingle Jenkinson, C
Fitzpatrick, R
Brennan, C
Swash, M
Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40
title Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40
title_full Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40
title_fullStr Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40
title_full_unstemmed Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40
title_short Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40
title_sort evidence for the validity and reliability of the als assessment questionnaire the alsaq 40
work_keys_str_mv AT jenkinsonc evidenceforthevalidityandreliabilityofthealsassessmentquestionnairethealsaq40
AT fitzpatrickr evidenceforthevalidityandreliabilityofthealsassessmentquestionnairethealsaq40
AT brennanc evidenceforthevalidityandreliabilityofthealsassessmentquestionnairethealsaq40
AT swashm evidenceforthevalidityandreliabilityofthealsassessmentquestionnairethealsaq40