A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia
Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfus...
| Main Author: | |
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| Format: | Thesis |
| Language: | English |
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2013
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| Online Access: | http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf |
| _version_ | 1825833687592206336 |
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| author | Othman Tan, Suria Emilia |
| author_facet | Othman Tan, Suria Emilia |
| author_sort | Othman Tan, Suria Emilia |
| collection | USM |
| description | Thalassaemia is one of the commonest genetic blood disorders in the world. It is
characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis,
severe anaemia and chronic disease in children and adults. A child with thalassaemia
requires lifelong regular blood transfusion in order to prolong survival and reduce
extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only
affect patient as an individual; it also involves variety of emotional and psychological
burden to the parents and family as a whole. Unfortunately, there are very few studies
done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion
dependant thalassaemia which is the reason why this study is important.
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| first_indexed | 2024-03-06T15:11:31Z |
| format | Thesis |
| id | usm.eprints-37577 |
| institution | Universiti Sains Malaysia |
| language | English |
| last_indexed | 2024-03-06T15:11:31Z |
| publishDate | 2013 |
| record_format | dspace |
| spelling | usm.eprints-375772019-04-12T05:26:09Z http://eprints.usm.my/37577/ A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia Othman Tan, Suria Emilia RJ101 Child Health. Child health services Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfusion in order to prolong survival and reduce extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only affect patient as an individual; it also involves variety of emotional and psychological burden to the parents and family as a whole. Unfortunately, there are very few studies done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion dependant thalassaemia which is the reason why this study is important. 2013-11 Thesis NonPeerReviewed application/pdf en cc_by_sa http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf Othman Tan, Suria Emilia (2013) A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia. Masters thesis, Universiti Sains Malaysia. |
| spellingShingle | RJ101 Child Health. Child health services Othman Tan, Suria Emilia A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title | A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_full | A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_fullStr | A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_full_unstemmed | A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_short | A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_sort | pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in hospital usm malaysia |
| topic | RJ101 Child Health. Child health services |
| url | http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf |
| work_keys_str_mv | AT othmantansuriaemilia apilotstudyonpedsqlmodulimpakkeluargaamongcaregiversofchildrenwithtransfusiondependantthalassaemiainhospitalusmmalaysia AT othmantansuriaemilia pilotstudyonpedsqlmodulimpakkeluargaamongcaregiversofchildrenwithtransfusiondependantthalassaemiainhospitalusmmalaysia |