Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers

Introduction: Hemoglobin E beta thalassaemia is prevalent in Malaysia. Knowing thalassaemia is a chronic disease it is a lifelong burdens not only to the patient but also to the parent and other caretakers. Psychological distress is manifested in multiple ways and at different level of severity....

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Main Author: Ghani, Mohd. Sufian Ardi Abd.
Format: Thesis
Language:English
Published: 2016
Subjects:
Online Access:http://eprints.usm.my/42359/1/Dr._Mohd_Sufian_Ardi-24_pages.pdf
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author Ghani, Mohd. Sufian Ardi Abd.
author_facet Ghani, Mohd. Sufian Ardi Abd.
author_sort Ghani, Mohd. Sufian Ardi Abd.
collection USM
description Introduction: Hemoglobin E beta thalassaemia is prevalent in Malaysia. Knowing thalassaemia is a chronic disease it is a lifelong burdens not only to the patient but also to the parent and other caretakers. Psychological distress is manifested in multiple ways and at different level of severity. Therefore coping strategies are developed in order to reduce the stress hence ascertain a high quality of life. Objectives: The aim of this study were to determine the mean psychological distress level and brief COPE of caretakers, to compare mean psychological distress level with brief COPE and income status and to identify the associated factors for psychological distress and brief COPE respectively. Methodology: DASS 21 and brief COPE questionnaires. 3.54). Stress mean score was (4.25, SD 3.26). The highest mean score for brief COPE was religion (7.00, IQR 2.00). Depressive caretakers had significant score for substance use (4.50, IQR 3.00). Meanwhile anxious caretakers had significant score for denial (5.50, IQR 3.00), substance use (4.00, IQR 4.00) and behavior disengagement (4.00, IQR 3.00). There was no significant difference between psychological distress and income status. Age, gender, education, working and income status were identified to have association with brief COPE. Conclusion: Majority of caretakers had utilized religion coping, meanwhile substance use, denial and behavioral disengagement were utilized by depressive and anxious caretakers. Scoring for DASS 21 showed no significant different between two groups of income. Brief COPE was associated with age, gender, education, working and income status.
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spelling usm.eprints-423592019-04-12T05:25:28Z http://eprints.usm.my/42359/ Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers Ghani, Mohd. Sufian Ardi Abd. R Medicine (General) Introduction: Hemoglobin E beta thalassaemia is prevalent in Malaysia. Knowing thalassaemia is a chronic disease it is a lifelong burdens not only to the patient but also to the parent and other caretakers. Psychological distress is manifested in multiple ways and at different level of severity. Therefore coping strategies are developed in order to reduce the stress hence ascertain a high quality of life. Objectives: The aim of this study were to determine the mean psychological distress level and brief COPE of caretakers, to compare mean psychological distress level with brief COPE and income status and to identify the associated factors for psychological distress and brief COPE respectively. Methodology: DASS 21 and brief COPE questionnaires. 3.54). Stress mean score was (4.25, SD 3.26). The highest mean score for brief COPE was religion (7.00, IQR 2.00). Depressive caretakers had significant score for substance use (4.50, IQR 3.00). Meanwhile anxious caretakers had significant score for denial (5.50, IQR 3.00), substance use (4.00, IQR 4.00) and behavior disengagement (4.00, IQR 3.00). There was no significant difference between psychological distress and income status. Age, gender, education, working and income status were identified to have association with brief COPE. Conclusion: Majority of caretakers had utilized religion coping, meanwhile substance use, denial and behavioral disengagement were utilized by depressive and anxious caretakers. Scoring for DASS 21 showed no significant different between two groups of income. Brief COPE was associated with age, gender, education, working and income status. 2016 Thesis NonPeerReviewed application/pdf en http://eprints.usm.my/42359/1/Dr._Mohd_Sufian_Ardi-24_pages.pdf Ghani, Mohd. Sufian Ardi Abd. (2016) Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers. Masters thesis, Universiti Sains Malaysia.
spellingShingle R Medicine (General)
Ghani, Mohd. Sufian Ardi Abd.
Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
title Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
title_full Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
title_fullStr Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
title_full_unstemmed Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
title_short Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
title_sort children with transfusion dependent thalassaemia the study of psychological distress and coping strategies among caretakers
topic R Medicine (General)
url http://eprints.usm.my/42359/1/Dr._Mohd_Sufian_Ardi-24_pages.pdf
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