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A journey toward an open data culture through transformation of shared data into a data resource
Published 2022-01-01“…Embracing the constraints imposed by data privacy considerations, especially for biomedical data, must be emphasized for data outside of the United States until data privacy law(s) are established at the Federal and/or State level.…”
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Who owns (or controls) health data?
Published 2024-02-01“…Rights-based data privacy laws, while lauded by individuals, are viewed as problematic for the researcher due to the distributed nature of data control. …”
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