РЕДКИЕ (ОРФАННЫЕ) ЗАБОЛЕВАНИЯ: СОЦИАЛЬНО-ПРАВОВОЙ АСПЕКТ by Вера Сергеевна Зубкова, Ирина Ивановна Игнатовская, Марине Геворговна Могробян

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Socio-economic and regional aspects of pharmaceutical care to patients with rare diseases in the Omsk region by V E Atavin, E E Loskutova, M M Kurashov, L V Shukil’

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Quality of life of patients with different forms of hemophilia on the example of Nizhny Novgorod region by D. S. Fokina, O. V. Zhukova, S. A. Volkova, A. L. Khokhlov

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THE STUDY OF THE STRUCTURE OF REGIONAL SEGMENTS OF THE FEDERAL REGISTER OF PERSONS SUFFERING FROM CHRONIC AND PROGRESSIVE ŽIZNEUGROŽAÛŜIMI OF RARE (ORPHAN) DISEASES by R. I. Agudina, N. V. Kosakova, N. I. Gavrilina

Subjects: “…орфанные заболевания…”
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Lysosomal lipid storage diseases in children. Modern diagnostic and treatment methods by I. N. Zakharova, А. N. Goryaynova, I. D. Maikova, N. V. Koroid, L. P. Katasonova, O. I. Elfimova, N. E. Kuzina, E. A. Dikova

Subjects: “…орфанные заболевания…”
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Threat to life as a predictor of the choice of coping strategies, the level of adherence to treatment and quality of life in adult patients with cystic fibrosis by Илья Николаевич Абросимов

Subjects: “…орфанные заболевания…”
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Economic analysis of the use of drugs for the treatment of hemophilia A, B and Willebrand's disease by D. S. Fokina, O. V. Zhukova, A. L. Khokhlov, S. A. Volkova

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