Study protocol: Generation Victoria (GenV) special care nursery registry by Jing Wang, Yanhong Hu, Lana Collins, Anna Fedyukova, Varnika Aggarwal, Fiona Mensah, Jeanie Cheong, Melissa Wake, None

“…Objectives We aim to establish a proof-of-concept, Victoria-wide registry of babies admitted to SCN, embedded within the whole-of-Victoria Generation Victoria (GenV) cohort. Methods This prototype registry is a depth sub-cohort nested within GenV, targeting all babies born in Victoria from Oct-2021 to Oct-2023. …”
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Enhancing Value and Uptake for Whole-Population Cohorts of Children and Parents: Methods to Integrate Registries into the Generation Victoria Cohort by Valerie Sung, Katrina Williams, Ella Perlow, Yanhong J. Hu, Susannah Ahern, Joanne M. Said, Bill Karanatsios, John L. Hopper, John J. McNeil, Leo Donnan, Sharon Goldfeld, Melissa Wake

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Improving Cohort-Hospital Matching Accuracy through Standardization and Validation of Participant Identifiable Information by Yanhong Jessika Hu, Anna Fedyukova, Jing Wang, Joanne M. Said, Niranjan Thomas, Elizabeth Noble, Jeanie L. Y. Cheong, Bill Karanatsios, Sharon Goldfeld, Melissa Wake

“…To develop optimized cohort matching to birthing hospital clinical records, this pilot drew on a one-year (December 2020–December 2021) cohort for a single Australian birthing hospital participating in the whole-of-state Generation Victoria (GenV) study. For 1819 consented mother-baby pairs and 58 additional babies (whose mothers were not themselves participating), we tested the accuracy and effort of various approaches to matching. …”
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