Essential requirements for the governance and management of data trusts, data repositories, and other data collaborations by P Alison Paprica, Monique Crichlow, Donna Curtis Maillet, Sarah Kesselring, Conrad Pow, Thomas P. Scarnecchia, Michael J. Schull, Rosario G. Cartagena, Annabelle Cumyn, Salman Dostmohammad, Keith O. Elliston, Michelle Greiver, Amy Hawn Nelson, Sean L. Hill, Wanrudee Isaranuwatchai, Evgueni Loukipoudis, James Ted McDonald, John R. McLaughlin, Alan Rabinowitz, Fahad Razak, Stefaan G. Verhulst, Amol A. Verma, J. Charles Victor, Andrew Young, Joanna Yu, Kimberlyn McGrail

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Helping everyone do better: a call for validation studies of routinely recorded health data by Ehrenstein V, Petersen I, Smeeth L, Jick SS, Benchimol EI, Ludvigsson JF, Sørensen HT

“…Vera Ehrenstein,1 Irene Petersen,1,2 Liam Smeeth,3 Susan S Jick,4 Eric I Benchimol,5,6 Jonas F Ludvigsson,7,8 Henrik Toft Sørensen11Department of Clinical Epidemiology, Aarhus University Hospital, Aarhus, Denmark; 2Department of Primary Care and Population Health, University College London, London, UK; 3Department of Non-Communicable Disease Epidemiology, London School of Hygiene and Tropical Medicine, London, UK; 4Boston Collaborative Drug Surveillance Program, Boston University School of Public Health, Boston, MA, USA; 5Department of Pediatrics and School of Epidemiology, Public Health and Preventive Medicine, Faculty of Medicine, University of Ottawa, Ottawa, ON, Canada; 6Institute for Clinical Evaluative Sciences, Toronto, ON, Canada; 7Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, 8Department of Pediatrics, University Hospital of Örebro, SwedenThere has been a surge of availability and use for research of routinely collected electronic health data, such as electronic health records, health administrative data, and disease registries. …”
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Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data by P Alison Paprica, Kimberlyn McGrail, Michael J Schull, Dr.

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Applying the balanced scorecard to local public health performance measurement: deliberations and decisions by Kurji Karim, Stalker Shelley, d'Entremont Nadine, Weir Erica, Robinson Victoria

“…In 2004 the provincial Institute for Clinical Evaluative Sciences based in Ontario, Canada introduced a public-health specific balanced scorecard framework. …”
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Depressive episodes, weight change, and incident diabetes in a Canadian community sample by Eva Graham, Norbert Schmitz, Laura Rosella

“…The dataset for this study is currently being prepared by the Institute for Clinical Evaluative Sciences (ICES) and the findings of this analysis will be presented at this conference. …”
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Training and capacity development in patient-oriented research: Ontario SPOR SUPPORT Unit (OSSU) initiatives by Colin MacArthur, Rob Van Hoorn, John Lavis, Sharon Straus, Nicola Jones, Lorraine Bayliss, Amanda L. Terry, Susan Law, Charles Victor, Denis Prud’homme, John Riley, Moira Stewart

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Evaluating the potential public health impacts of the Toronto cold weather program by Tarik Benmarhnia, Xu Zhao, John Wang, Melissa Macdonald, Hong Chen

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Symposium: Distributed Networks of Federated Secure Research Data Environments – Enabling Analytics Across Multiple Platforms by Matthias Schneider

“…The following individuals have been approached to represent their organisations in this symposium: • Professor David Ford, Swansea University: UK Secure eResearch Platform (UK SErP) • Charles Victor, Institute for Clinical Evaluative Sciences (ICES): ICES Data & Analytic Virtual Environment (IDAVE) • Professor Louisa Jorm, Centre for Big Data Research in Health, University of New South Wales: E-Research Institutional Cloud Architecture (ERICA) • Professor Kimberlyn McGrail, Population Data BC: Secure Research Environment (SRE) Results / Conclusion / Implications This symposium will help formulate requirements for and barriers to distributed networks of federated secure research data environments, and create a foundation for data analytics across multiple platforms.…”
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Health Equity in Cancer Screening in Calgary – A Geographic Approach to Account for Population Socioeconomic Status by Ning Liu, Simone Vigod, Michèle Farrugia, Marcelo Urquia, Joel Ray

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Malignant Hyperthermia: Report of Two Cases with a Neglected Complication in Cardiac Surgery by Mahdi Neshati, Manizheh Azadeh, Parinaz Neshati, Tyrone Burnett, Ryan Saenz, Bahman Karbasi, Ghader Shahmohammadi, Eskandar Nourizadeh, Mohsen Rostamzadeh

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Completeness and accuracy of anthropometric measurements in electronic medical records for children attending primary care by Sarah Carsley, Catherine Sari Birken, Patricia Parkin, Eleanor Pullenayegum, Karen Tu

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Thoughts and musings from the new International Population Data Linkage Network (IPDLN) Co-directors by Michael Schull, William Ghali

“…EDITORIAL The beginning of 2017 triggered a change in leadership at the International Population Data Linkage Network (IPDLN), as Professor David Ford’s two year term as director of the network wound down, and the baton was handed on to new Canadian co-leadership, from the Institute for Clinical Evaluative Sciences in Ontario, and the O’Brien Institute for Public Health at the University of Calgary. …”
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Political and Policy Arguments for Integrated Data by Adalsteinn D Brown, Andrew S Boozary, David Henry, Greg Marchildon, Michael Schull

“…Methods/Approach We used document and literature analysis to develop descriptions of the Icelandic Health Sector Database Act, the creation of the Institute for Clinical Evaluative Sciences in Ontario (Canada), the care.data initiative in the United Kingdom, and the Health Datapalooza initiative in the US and used an Ideas, Institutions and Actors framework to compare the experience with integrated data policy and politics. …”
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Real-world outcomes of mepolizumab for the treatment of severe eosinophilic asthma in Canada: an observational study by Kenneth R. Chapman, Kathryn Cogger, Erin Arthurs, Callahan LaForty, Shane Golden, Bradley Millson, Koyo Usuba, Christopher Licskai

“…Patients were identified using the mepolizumab patient support program and linked to the Institute for Clinical Evaluative Sciences database of publicly accessed healthcare. …”
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Neonatal and infant readmissions for late preterm and early term babies in Ontario and England: a cohort study using linked population-level healthcare data by Katie Harron, Ruth Gilbert, Astrid Guttmann, David Cromwell, Jan van der Meulen

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Examination of High-Cost Patients in Ontario by Esha Homenauth, Erin Graves, Lisa Ishiguro, Refik Saskin, Michael Schull, Walter Wodchis, Marit Tanke

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Examining Treatment Patterns and Real-World Outcomes in Chronic Lymphocytic Leukemia Using Administrative Data in Ontario by Soo Jin Seung, Manjusha Hurry, Shazia Hassan, Ashlie Elnoursi, Krystin A. B. Scheider, Dennis Wagner, Jonathan J. Edwin, Andrew T. W. Aw

“…Data were accessed using the Institute of Clinical Evaluative Sciences (ICES), which collects various population-level health information. …”
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Narrowing the policy gap: lessons from years 2 and 3 of the British Columbia influenza prevention policy by Antonia M. Di Castri, Donna M. Halperin, Charmaine M. McPherson, Alexandra Nunn, Haley Farrar-Muir, Jeffrey C. Kwong, Bonnie Henry

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Analysis of the relationship between surgeon procedure volume and complications after total knee arthroplasty using a propensity-matched cohort study by J Michael Paterson, Tosan Okoro, Sebastian Tomescu, Bheeshma Ravi

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Differences in the breast cancer diagnostic process across stage groups in Ontario, Canada by Patti Groome, Marlo Whitehead, Li Jiang, Julie Gilbert, Eva Grunfeld, Hugh Langley, Aisha Lofters, Rahim Moineddin, Geoff Porter

“…We linked data from Cancer Care Ontario and the Institute for Clinical Evaluative Sciences including: Ontario Cancer Registry, physician claims, ambulatory, ER visits, and hospital discharges. …”
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