Showing 1 - 20 results of 89 for search '"The Journal of Haemophilia Practice"', query time: 0.06s Refine Results
  1. 1
    A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts

    A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts by Benson Gary, Bhandari Trupti, Gomez Keith, Holder Kerry-Ann, Stephensen David, Wilkinson Alice, Mangles Sarah

    Published 2023-12-01
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  2. 2
    The potential impact of gene therapy on health-related quality of life (HRQoL) domains in haemophilia

    The potential impact of gene therapy on health-related quality of life (HRQoL) domains in haemophilia by Bullinger Monika, Gardner Diandra Latibeaudiere, Lewis Hannah B, Miesbach Wolfgang, Nolte Sandra, O’Hara Jamie, O’Mahony Brian, Pollard Debra, Skinner Mark, Quinn Jennifer

    Published 2021-05-01
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  3. 3
    Do nurses have the switch factor?

    Do nurses have the switch factor? by Mulders Greta, Uitslager Nanda, Alavian Sharon, Wareing Anne, Stein Oldenburg Kathi

    Published 2020-11-01
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  4. 4
    The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre

    The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre by Aradom Elsa, Gomez Keith

    Published 2021-05-01
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  5. 5
    “What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia

    “What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia by Hughes Thomas, Brok-Kristensen Mikkel, Gargeya Yosha, Worsøe Lottrup Anne Mette, Bo Larsen Ask, Torres-Ortuño Ana, Mackett Nicki, Stevens John

    Published 2020-06-01
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  6. 6
    Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study

    Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study by Hughes Thomas, Brok-Kristensen Mikkel, Gargeya Yosha, Worsøe Lottrup Anne Mette, Bo Larsen Ask, Torres-Ortuño Ana, Mackett Nicki, Stevens John

    Published 2020-12-01
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  7. 7
    The impact of heavy periods on women with a bleeding disorder

    The impact of heavy periods on women with a bleeding disorder by Sugg Nicola, Morgan Debra

    Published 2021-05-01
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  8. 8
    Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study

    Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study by Kisakye Agnes, Kasirye Phillip Gitah, Muramuzi Dan, Opuch Daniel, Nampiima Joan, Ndeezi Grace, Yeka Adoke, Vultur Horatiu

    Published 2023-12-01
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  9. 9
    Haemophilia specialist nurses’ perceptions of haemophilia B

    Haemophilia specialist nurses’ perceptions of haemophilia B by Chaplin Steve, Birkedal Maj Friberg, Crilly Erica, Fletcher Simon, Garcia Sara, Mulders Greta, Myrin-Westesson Linda, Pollard Debra, Sanigorska Anna, Uitslager Nanda

    Published 2021-10-01
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  10. 10
    Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report

    Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report by Kasirye Philip, Kisakye Agnes, Nakalyango Annette, Barnabas Atwiine

    Published 2022-05-01
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  11. 11
    Professional education among haemophilia nurses: a survey of current practices

    Professional education among haemophilia nurses: a survey of current practices by Fletcher Simon, Chaplin Steve, Harrison Cathy, Juusola Kristian, Collins Norma

    Published 2020-05-01
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  12. 12
    The use of rIX-FP in patients with haemophilia B: a nurse's perspective

    The use of rIX-FP in patients with haemophilia B: a nurse's perspective by Garner Kara, Guelcher Christine, Pollard Debra

    Published 2021-08-01
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  13. 13
    The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium

    The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium by Pollard Debra, Khair Kate

    Published 2022-11-01
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  14. 14
    Living, Caring, Learning – Addressing challenges in the transition to adult care

    Living, Caring, Learning – Addressing challenges in the transition to adult care by Mulders Greta

    Published 2023-12-01
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  15. 15
    Telemedicine in haemophilia during COVID-19 and beyond: a comprehensive review

    Telemedicine in haemophilia during COVID-19 and beyond: a comprehensive review by Li Casey L, Chan Anthony KC, Matino Davide, Bhatt Mihir D, Decker Kay, Strike Karen

    Published 2021-10-01
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  16. 16
    Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

    Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency by Bok Amanda, Noone Declan, Skouw-Rasmussen Naja

    Published 2023-02-01
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  17. 17
    Experience of switching to NovoEight: views of people with haemophilia

    Experience of switching to NovoEight: views of people with haemophilia by Pollard Debra, Khair Kate, Holland Mike

    Published 2020-06-01
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  18. 18
    Comparison of perioperative practices for placement of central venous access devices (CVAD) in children with haemophilia

    Comparison of perioperative practices for placement of central venous access devices (CVAD) in children with haemophilia by Kwan Celia, Chan Anthony KC, Koh Pei Lin, Kadir Nur Insyirah Abdul, Decker Kay, Lim Chiew Ying, Lam Joyce Ching Mei

    Published 2022-09-01
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  19. 19
    Living, Caring, Learning - Building family relationships in haemophilia care

    Living, Caring, Learning - Building family relationships in haemophilia care by Shoemark Robyn

    Published 2024-02-01
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  20. 20
    Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care

    Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care by King Jennifer, Fletcher Kara, Tupper Susan M., Brose Kelsey, Goodridge Donna

    Published 2020-10-01
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