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341
Viability Assessment of Light Rail Line Planning: Case Study of Cincinnati Eastern Corridor
Published 2017-04-01“…Abstract With increasing environmental concerns, light rail transit (LRT) has drawn attention for consideration in urban transportation planning by various levels of authorities in the US Government. Advocacy groups need an effective method for viability assessment of the alternatives. …”
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342
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Information, access, and conflict: transnational interest groups and the politics of global tax governance
Published 2023“…Existing ‘transnationalist’ tax IPE literature has largely neglected the role of transnationally active taxpayer groups and often deploys explanations centred on logics of ideas and socialisation to explain the nature of transnational tax policymaking (businesses – firms and their advocacy groups). In focusing exclusively on expert networks, much of this literature neglects the role of political interests in the transnational tax policymaking space. …”
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344
The 'who' and 'what' of #diabetes on Twitter
Published 2017“…Whereas the hub landscape is diffuse and uid over time, top authorities are highly persistent across time and comprise bloggers, advocacy groups and NGOs related to diabetes, as well as for-profit entities without specific diabetes expertise. …”
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345
Fair, just and compassionate: A pilot for making allocation decisions for patients requesting experimental drugs outside of clinical trials
Published 2018“…Driving the demand are new treatments for serious unmet medical needs; patient advocacy groups pressing for access to emerging treatments; internet platforms enabling broad awareness of compelling cases or novel drugs and a lack of trust among some that the pharmaceutical industry and/or the FDA have patients’ best interests in mind. …”
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346
A Review of Canadian Cancer-Related Clinical Practice Guidelines and Resources during the COVID-19 Pandemic
Published 2021-02-01“…We also outlined the resources provided by Canadian cancer charities and patient advocacy groups to provide cancer patients, or potential cancer patients, with useful information and valuable support resources. (3) Results: The identified provincial guidelines emphasized <i>cancer care</i> (i.e., treatment) more than <i>cancer control </i>(i.e., screening). …”
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347
Lessons from implementing the Australian National Action Plan for Endometriosis
Published 2022-07-01“…This blueprint is outlined in the National Action Plan for Endometriosis (NAPE), created from a partnership between government, endometriosis experts and advocacy groups. The NAPE aims to improve patient outcomes in the areas of awareness and education, clinical management and care and research. …”
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348
Sickle Cell Disease in the Democratic Republic of Congo: Assessing Physicians’ Knowledge and Practices
Published 2020-07-01“…Specific training alongside existing programs (HIV, malaria), early diagnosis of the disease, and the creation of patient advocacy groups should be implemented to improve SCD patient care.…”
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349
Behind Closed Doors: The Priorities of the Alcohol Industry as Communicated in a Trade Magazine
Published 2018-07-01“…The aim of this study was to assess industry strategic approaches as communicated in articles published in a leading Australian alcohol trade magazine to provide insights for policy makers and advocacy groups.Methods: Thematic analysis of 362 articles published in a trade magazine over a one-year period.Results: Three primary themes were evident in the articles: (1) the legitimization of alcohol as an important social and economic product, (2) the portrayal of the industry as trustworthy and benign, and (3) the strategic embedding of alcohol in various facets of everyday life.Conclusions: There was a general failure to acknowledge the substantial burden of disease caused by alcohol products, and instead much effort was expended on legitimizing the product and the companies responsible for its production, distribution, and promotion. …”
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350
Quality of life of survivors of malignant pleural mesothelioma in Japan: a cross sectional study
Published 2018-03-01“…The questionnaires were sent to hospitals and patient advocacy groups, distributed to the patients, completed, and sent back to the researchers by postal mail. …”
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351
What is the awareness of rare diseases among medical students? A survey in Bulgaria
Published 2023-07-01“…Involvement of patient organisations and advocacy groups might enhance students’ knowledge of the challenges faced by people with RDs. …”
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352
A Citywide Approach to SARS-CoV2 Testing
Published 2021-06-01“…During the challenges of providing traditional inpatient and ambulatory care during the pandemic, our health system, city leadership, and community advocacy groups united to broaden the scope of care to include widespread, population-based SARS-CoV2 testing. …”
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353
Incidence and prevalence of major epilepsy-associated brain lesions
Published 2022-01-01“…Our estimates can guide patient advocacy groups, clinicians, researchers, policymakers in education, development of health care strategy, resource allocation, and reimbursement schedules.…”
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354
Bridging the gap, how interprofessional collaboration can support emergency preparedness for children with disabilities and their families: an exploratory qualitative study
Published 2023-04-01“…Stronger interprofessional networks would help overcome many of the barriers identified by participants, and advocacy groups appear to be well-positioned to bridge the gap between these professionals and their areas of expertise.…”
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355
Genetic educational needs and the role of genetics in primary care: a focus group study with multiple perspectives
Published 2011-02-01“…The aim of this study was to explore the role of genetics in primary care (i.e. family medicine and midwifery care) and the need for education in this area as perceived by primary care providers, patient advocacy groups and clinical genetics professionals.</p> <p>Methods</p> <p>Forty-four participants took part in three types of focus groups: mono-disciplinary groups of general practitioners and midwives, respectively and multidisciplinary groups composed of a diverse set of experts. …”
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356
Historic tobacco legislation in Israel: a moment to celebrate
Published 2020-05-01“…The cohesive partnership between legislators, public health organizations and professionals, advocacy groups, academia, and leading journalists was critical to this success. …”
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357
"Clicks, likes, shares and comments" a systematic review of breast cancer screening discourse in social media.
Published 2020-01-01“…The majority of participants are lay individuals as opposed to healthcare professionals or advocacy groups. The lay misunderstandings surrounding the harms and benefits of mammography is well mirrored in the content of social media discourse. …”
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358
Establishment of the MGH Postpartum Psychosis Project: MGHP3
Published 2023-01-01“…Recruitment sources include social media, online advertisements, physician referral, community outreach, and partnership with PP advocacy groups. <h4>Conclusions</h4> The rigorous phenotyping, genetic sampling, and neuroimaging studies in this sample of women with histories of PP will contribute to better understanding of this serious illness. …”
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Digital Community Inclusion of Individuals With Serious Mental Illness: A National Survey to Map Digital Technology Use and Community Participation Patterns in the Digital Era
Published 2021-09-01“…MethodsA web-based survey of technology use and virtual participation was developed and distributed among adults with and those without SMI via social media, national email discussion lists, nonprofit organizations, and advocacy groups. ResultsA total of 381 adults aged 18 years or older participated in the survey, of whom 199 (52%) identified as having a SMI. …”
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Developing the Botswana Primary Care Guideline: an integrated, symptom-based primary care guideline for the adult patient in a resource-limited setting
Published 2016-08-01“…Stakeholder groups were set up to review specific content of the guideline to ensure compliance with Botswana government policy and the essential drug list.Results: Participants included clinicians, academics, patient advocacy groups, and policymakers from different disciplines, both private and public. …”
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