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361
Fetal alcohol spectrum disorders prevention and clinical guidelines research-workshop report
Published 2023-08-01“…Several speakers highlighted the work of non-profit organizations and advocacy groups in supporting families affected by FASD and other challenges faced by military families more broadly. …”
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362
Review of M. D. Perkins “Dangerous Affirmations: The Threat of ‘Gay Christianity’”
Published 2023-01-01“…The AFA is not without scrutiny and disdain by some LGBT advocacy groups, notably the Southern Poverty Law Center (SPLC), which has accused AFA of being an anti-gay hate group. …”
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363
Enduring uncertainties. Medical accounts on caring for young people with variations of sex characteristics
Published 2022-12-01“…Results:: Analysis resulted in six major themes: (1) With regard to patients’ and families lived experiences, interviewees reported that fertility was as a major issue for parents but not for intersex youth as they were said to live in the moment. (2) Respondents considered various forms of psycho-social care (professional support, peer support and informal support from family and friends) to be of fundamental importance for their patients, but many of them seemed critical about support from advocacy groups and activists. All healthcare providers reported significant gaps in (3) the transition process and (4) the establishment of multidisciplinary care teams due to structural, provider- and patient-related barriers. (5) Participants were in favor of a more holistic and patient-centred care approach and (6) were critical about the medicalized use of DSD (disorder of sex development) with patients and families. …”
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364
Debate of Ethnic Identity in Nepali Politics: An Examination of the debate from the Kisan Community of Eastern Nepal
Published 2014-05-01“…Along with the establishment of multiparty democracy, the community is exposed to external situations: political parties and economic organizations, advocacy groups, donor agencies and so on. A few literate Kisans seeking employment opportunities interfaced with the advocates of National Federations of Indigenous Nationalities and Action Aid Nepal after multiparty democracy. …”
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365
Smoking ban in public places in Japan - adverse legacy of the 2020 Olympic Paralympic Games?
Published 2018-03-01“…The allied industry spread a signature collecting activity earlier and much more organizationally than academic/medical and advocacy groups. The party committee of the LDP was held only twice. …”
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366
Ecological restoration of the Los Angeles River provides natural and human benefits as part of a virtuous socioecological cycle
Published 2022-08-01“…This self-reinforcing positive feedback is an example of a virtuous cycle established through a combination of long-term environmental planning, community-building, and watershed-scale scientific study to gain the support of stakeholders and align ecological intervention (i.e., restoration) with the plans and policies of governments, resource managers, conservation groups, and grassroots advocacy groups. Conservation and restoration projects targeting iconic and protected focal species can be an effective means of leveraging these interests and building support. …”
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367
Making Sure Orphan Drugs Don’t Get Left Behind
Published 2018-08-01“…Thus, governments either decline coverage or end up funding the drugs under pressure from patient advocacy groups. Without adequate compensation for their efforts, manufacturers will have no incentive to develop orphan drugs. …”
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368
Optimal profitable allocation of associated natural gas resource on a countrywide basis to mitigate flaring
Published 2023-11-01“…In recent years, it has also drawn the angst of the environmental and global-warming advocacy groups. The issues behind gas flaring are complex, as they involve a dynamic interplay of geosciences, engineering, economics, finance and natural resource policy-making.The purpose of this research is to analyze the associated gas problem quantitatively from a country-wide perspective. …”
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369
Hepatitis C in Israeli prisons: status report
Published 2020-10-01“…These measures, however, only came about after a prolonged campaign and legal battle by human rights organizations, patient advocacy groups and the medical community. Despite these encouraging changes, it appears that a significant portion of inmates in need of treatment are still not getting it due both to bureaucratic delays and to inmates’ reluctance. …”
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370
Public Talks and Science Listens: A Community-Based Participatory Approach to Characterizing Environmental Health Risk Perceptions and Assessing Recovery needs in the Wake of Hurr...
Published 2009-01-01“…The project provided useful heuristics for disaster response and management planning and a platform for future collaborative efforts in environmental health assessment and risk communication with local advocacy groups in south Terrebonne-Lafourche parishes.…”
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371
Establishment of the MGH Postpartum Psychosis Project: MGHP3.
Published 2023-01-01“…Recruitment sources include social media, online advertisements, physician referral, community outreach, and partnership with PP advocacy groups.<h4>Conclusions</h4>The rigorous phenotyping, genetic sampling, and neuroimaging studies in this sample of women with histories of PP will contribute to better understanding of this serious illness. …”
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372
Aotearoa’s Food Environment Dashboard: Sharing and Holding to Account
Published 2023-03-01“…The Food Environments Dashboard Aotearoa was created to collate and translate more than a decade’s worth of food environment monitoring studies and their findings for policy-makers and public health advocacy groups to encourage policy change. Based on Australia’s Food Environments Dashboard, the key indicators from these studies have been identified and assessed against defined criteria to give a green (promotes health), amber (needs improvement) or red (unhealthy) rating. …”
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373
Exposing Big Tobacco’s rebranding: A déjà vu to fool policymakers and the public
Published 2020-10-01“…The Campaign for Tobacco-Free Kids, through its international network of advocacy groups, has collected evidence illustrating the stark contrast between tobacco companies’ misleading calls for a smoke-free future and their continued focus on marketing cigarettes in low- and middle-income countries, particularly to minors. …”
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374
Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives
Published 2022-07-01“…Results We performed semi-structured interviews with 24 parents (21 mothers; 3 fathers; median age = 42.5 years) of children with complex VMs and overgrowth disorders living in the US, recruited through two patient advocacy groups – CLOVES Syndrome Community, and Klippel-Trenaunay Support Group. …”
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375
Brain Tumor Discussions on Twitter (#BTSM): Social Network Analysis
Published 2020-10-01“…Patient advocates generated the most #BTSM tweets (33.13%), while advocacy groups, caregivers, doctors, and researchers generated 7.01%, 4.63%, 3.86%, and 3.37%, respectively. …”
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376
A sex difference in the predisposition for physical competition: males play sports much more than females even in the contemporary U.S.
Published 2012-01-01“…According to most scholars, advocacy groups, and the United States courts, however, this hypothesis is challenged by modest sex differences in organized school sports participation in the contemporary U.S., where females comprise 42% of high school participants and 43% of intercollegiate participants. …”
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377
Tobacco and anti-tobacco advertisement in Poland, 1989-2000
Published 2018-03-01“…Methods A thematic analysis of relevant advertising materials produced between 1989 and 2000 available in Polish media archives, collections of anti-tobacco advocacy groups, and tobacco industry websites, was conducted. …”
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378
Adult vaccination as part of a healthy lifestyle: moving from medical intervention to health promotion
Published 2019-02-01“…Health authorities and advocacy groups in countries at the forefront of this trend are now developing strategies to ameliorate the social and financial effects of an ageing population. …”
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379
Over-the-counter hearing aids: implementations and opportunities
Published 2024-03-01“…After decades of effort by shareholders, including government agencies, patient advocacy groups, and professional organizations, the U.S. …”
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380
Recruitment strategies and geographic representativeness for patient survey studies in rare diseases: Experience from the living with myeloproliferative neoplasms patient survey.
Published 2020-01-01“…The recruitment method yielding the greatest number of respondents was advertisements on MPN-focused social media (47.6% of respondents), followed by emails (35.1%) and postcards (13.9%) sent through MPN advocacy groups. Home state information was provided by 775 respondents from 46 states (range of respondents per state, 1-89). …”
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