The State of Cancer Care in the United Arab Emirates in 2022 by Humaid O. Al-Shamsi

“…Finally, we provide recommendations for policymakers, regulators, payers, patient advocacy groups, and the UAE oncology community regarding the delivery and future planning of high-quality cancer care. …”
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Playing with planning : evaluating games as a method of participatory planning and policymaking by Gilman, Scott T.(Scott Thompson)

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Moving through adulthood: The lived experience of Irish adults with PKU by Mary-Ellen O'Shea, Bernadette Sheehan Gilroy, Anna-Marie Greaney, Anita MacDonald

“…These findings offer new insight into the vulnerability attached to the experience of aging with PKU and may be beneficial to advocacy groups and for future development of policy and practice.…”
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Shaping the Health and Foreign Policy Framework; Lessons Learned for Global Health Diplomacy in Iran by Sougand Tourani, Mohammad Salimi, Seyed Masood Mousavi

“…One of these conditions is multilateral negotiations, in which non-governmental organizations, advocacy groups, foundations, research centers, and private sectors get together to affect the present representatives of the member countries’ decision making about health topics and also to be part of the negotiation process.On the other hand, the international commitments of the Millennium Development goals, has put the health issue in a special position in international discussions. …”
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Comparative effectiveness of urine drug screening strategies alongside opioid agonist treatment in British Columbia, Canada: a population-based observational study protocol by Malcolm Maclure, M Eugenia Socías, Evan Wood, Paul Gustafson, Robert W Platt, Bohdan Nosyk, Jeong Eun Min, Micah Piske, Julie Bruneau, U Siebert, P Todd Korthuis, Paxton Bach, B Carolina Guerra-Alejos, Megan Kurz, Laura M Dale, X Joan Hu, Kyle Kampman, Tom Loughin

“…Results will be disseminated to local advocacy groups and decision-makers, national and international clinical guideline developers, presented at international conferences and published in peer-reviewed journals electronically and in print.…”
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The Value of Cancer Immunotherapy Summit at the 2016 Society for Immunotherapy of Cancer 31st Anniversary Annual Meeting by Howard L. Kaufman, Michael B. Atkins, Adam P. Dicker, Heather S. Jim, Louis P. Garrison, Roy S. Herbst, William T. McGivney, Steven Silverstein, Jon M. Wigginton, Peter P. Yu

“…This half-day summit addressed the current landscape of cancer therapy value models, economic outcomes, the current status of predictive biomarkers, as well as presentations from third-party payers, industry representatives, patient outcome experts, and patient advocacy groups to gain their perspectives on the value of cancer immunotherapy. …”
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Impact of social determinants of health on individuals living with generalized myasthenia gravis and implications for patient support programs by Tom Hughes, Ashley E. L. Anderson, Ali A. Habib, Kathy Perez, Cathleen Bergin, Sharon Suchotliff, Cecilia Zvosec, Dajzsa McDaniel, Mai Sato, Albert Whangbo, Glenn Phillips

“…Further, providers, advocacy groups, manufacturers, and public organizations in the gMG ecosystem should strengthen collaborations with PSPs to enable individuals living with gMG to access the services they need to improve their health outcomes.…”
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Attitudes of health service providers: the perspective of Persons with Disabilities in the Kumasi Metropolis of Ghana by Eric Badu, Maxwell P. Opoku, Seth C.Y. Appiah

“…Introduction: Awareness of disability issues has gained considerable interest by advocacy groups in recent years. However, it is uncertain whether attitudes and perceptions of all service providers and society have adjusted accordingly towards the health care of people with disabilities. …”
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Dental opinion leaders’ perspectives on barriers and facilitators to HPV-related prevention by Stacey B. Griner, Erika L. Thompson, Cheryl A. Vamos, Anil K. Chaturvedi, Coralia Vazquez-Otero, Laura K. Merrell, Nolan S. Kline, Ellen M. Daley

“…Dental opinion leaders were identified through: (1) national professional organizations and advocacy groups, (2) by indication of an expert panel, and (3) focus groups conducted with oral health providers. …”
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Review of 11 national policies for rare diseases in the context of key patient needs by Safiyya Dharssi, Durhane Wong-Rieger, Matthew Harold, Sharon Terry

“…Despite these legislative efforts and the growing contributions of patient advocacy groups in moving forward implementation and adoption of rare disease programs, gaps still exist across the policy landscape for several countries. …”
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Patients with low activation level report limited possibilities to participate in cancer care by Bodil Westman, Karin Bergkvist, Andreas Karlsson Rosenblad, Lena Sharp, Mia Bergenmar

“…The preliminary findings were presented and discussed in a workshop with representatives from 21 cancer patient advocacy groups.…”
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Community-Engaged Learning in Food Systems and Public Health by Julie L. Self, Becky Handforth, Janelle Hartman, Corey McAuliffe, Elizabeth Noznesky, Rebecca J. Schwei, Laura Whitaker, Amanda J. Wyatt, Amy Webb Girard

“…The symposium drew diverse participants, including growers, farmers' market managers, advocacy groups, public-health scientists, policy-makers, students, and academicians. …”
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The impact of an integrated diabetes and kidney service on patients, primary and specialist health professionals in Australia: A qualitative study. by Edward Zimbudzi, Clement Lo, Tracy Robinson, Sanjeeva Ranasinha, Helena J Teede, Tim Usherwood, Kevan R Polkinghorne, Peter G Kerr, Gregory Fulcher, Martin Gallagher, Stephen Jan, Alan Cass, Rowan Walker, Grant Russell, Greg Johnson, Sophia Zoungas

“…<h4>Background</h4>To address guideline-practice gaps and improve management of patients with both diabetes and chronic kidney disease (CKD), we involved patients, health professionals and patient advocacy groups in the co-design and implementation of an integrated diabetes-kidney service.…”
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Significant risk of COVID-19 and related-hospitalization among patients with adrenal insufficiency: A large multinational survey by Christine Yedinak, Ian Louis Ross

“…ObjectiveTo determine self-reported incidence and potential risk factors for COVID-19 in patients with adrenal insufficiency (AI).MethodsA 27-item AI survey was developed for AI and COVID-19 status, vetted by specialists and patients, and distributed via social media, websites, and advocacy groups. Participation was voluntary and anonymous. …”
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Examining Capacity and Functioning of Bicycle Coalitions: A Descriptive Study by Melissa Bopp, Dangaia Sims, Nicole Vairo, Emily Hentz-Leister

“…Therefore, the purpose of this study was to examine capacity, strengths, and weaknesses of these organizations.MethodsBicycle coalitions/advocacy groups from English-speaking countries were recruited to take part in an online survey via email invitation. …”
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State-Level Renewable Energy Policy Implementation: How and Why Do Stakeholders Participate? by Valerie Rountree, Elizabeth Baldwin

“…While renewable energy offers new possibilities for clean energy generation, it also poses new regulatory and governance challenges as a wide range of stakeholders, such as the utilities, regulatory agencies, environmental and consumer advocacy groups, electricity generators, and private citizens, increasingly seek to influence how Renewable Portfolio Standards are implemented. …”
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Measuring the Impact of the COVID-19 Pandemic on Diagnostic Delay in Rare Disease by Caitlin Hampson, William Evans, Lucy McKay, Lara Menzies

“…A cross-sector multi-stakeholder coalition was formed, Action for Rare Disease Empowerment (ARDEnt), with representation from patients with rare diseases and carers, patient advocacy groups, clinicians, academics, data scientists, and industry. …”
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How organisations promoting vaccination respond to misinformation on social media: a qualitative investigation by Maryke S. Steffens, Adam G. Dunn, Kerrie E. Wiley, Julie Leask

“…Methods Using qualitative methods, we purposively sampled 21 participants responsible for routine social media activity and strategy from Australian organisations actively promoting vaccination on social media, including government health departments, local health services, advocacy groups, professional associations and technical/scientific organisations. …”
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A national collaboration on reducing tobacco use in the behavioral health population in the United States by Clifford Douglas, Bidisha Sinha

“…Traditionally, health professionals, governmental agencies and advocacy groups have not identified BH sufferers as a priority population for promoting smoking cessation. …”
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Responsible innovation in biotechnology: Stakeholder attitudes and implications for research policy by Pat Roberts, Joseph Herkert, Jennifer Kuzma

“…In comparison to government and advocacy groups, stakeholders promoting biotechnology innovations–industry, trade organizations, and academics–had more negative reactions to social science definitions of RI and to RI practices that relinquish control to people outside of technology development pipelines. …”
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