Patient advocacy groups: Need and opportunity in India by Kunal Shah, Sunil Garg

“…There′s a need to have a separate group of people who provide advocacy to the patient, or simply, a patient advocacy group which will work explicitly in these areas to increase transparency and credibility of healthcare system in India. …”
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Synchronous Conferencing by a Community Advocacy Group by Patricia Fahrni

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Patient advocacy group involvement in health technology assessments: an observational study by Ann Single, Ariana Cabrera, Simon Fifer, Jane Tsai, Jin-Young Paik, Philip Hope

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Advocacy groups versus state power : creating global politics of the environment by Ozeroff, Harry Cleveland.

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How green is green? : Conflict and collaboration among environmental advocacy groups by Field, Patrick

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Technical Evaluation Report 35: Synchronous Conferencing by a Community Advocacy Group by Patricia Fahrni

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Human Rights Advocacy Groups in Malaysia: The Case of the Suara Rakyat Malaysia (SUARAM) by Khoo Ying Hooi

“…One significant aspect is the close link of human rights advocacy groups with the political parties that can lead to problems of credibility and transparency.…”
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A Patient Advocacy Group Summit, Cancer Care in Turkey and The Society of Breast Health by Vahit Özmen

Subjects: “…patient advocacy group…”
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Interventions to reduce cancer screening inequities: the perspective and role of patients, advocacy groups, and empowerment organizations by Afua Richardson-Parry, Carole Baas, Shaantanu Donde, Bianca Ferraiolo, Maimah Karmo, Zorana Maravic, Lars Münter, Ignacio Ricci-Cabello, Mitchell Silva, Stacey Tinianov, Jose M. Valderas, Seth Woodruff, Joris van Vugt

“…Methods We prepared talking points to guide discussions between coauthors, who included representatives from nine patient and survivor advocacy groups, organizations working for citizen/patient empowerment, and health equity experts. …”
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‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics by Christina Q. Nguyen, Didu Kariyawasam, Kristine Alba‐Concepcion, Sarah Grattan, Kate Hetherington, Claire E. Wakefield, Susan Woolfenden, Russell C. Dale, Elizabeth E. Palmer, Michelle A. Farrar

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Perspectives of European Patient Advocacy Groups on Volunteer Registries and Vaccine Trials: VACCELERATE Survey Study by Sophia Themistocleous, Christos D Argyropoulos, Paris Vogazianos, George Shiamakkides, Evgenia Noula, Andria Nearchou, Andreas Yiallouris, Charalampos Filippou, Fiona A Stewart, Markela Koniordou, Ioannis Kopsidas, Helena H Askling, Sirkka Vene, Amandine Gagneux-Brunon, Jana Baranda Prellezo, Elena Álvarez-Barco, Jon Salmanton-García, Janina Leckler, Alan J Macken, Ruth Joanna Davis, Anna Maria Azzini, Charis Armeftis, Margot Hellemans, Romina Di Marzo, Catarina Luis, Ole F Olesen, Olena Valdenmaiier, Stine Finne Jakobsen, Pontus Nauclér, Odile Launay, Patrick Mallon, Jordi Ochando, Pierre van Damme, Evelina Tacconelli, Theoklis Zaoutis, Oliver A Cornely, Zoi Dorothea Pana

“…ObjectiveThe aim of this study was to approach members of patient advocacy groups (PAGs) across Europe to assess their willingness to register for the VACCELERATE Volunteer Registry and their perspectives related to participating in vaccine trials. …”
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P932: PATIENT PERSPECTIVES ON BCMA-TARGETED THERAPIES FOR MULTIPLE MYELOMA: A SURVEY CONDUCTED IN A PATIENT ADVOCACY GROUP by Jay R. Hydren, Dee Lin, Jorge Arturo Hurtado, Nathan W. Sweeney, Bingcao Wu, Katharine Gries, Nina Kim, Saurabh Patel, Douglas W. Sborov, Jesus Berdeja, Larry D. Anderson, Jinhai Stephen Huo, Jennifer M. Ahlstrom

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Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study by Paola Mosconi, Anna Roberto, Nicoletta Cerana, Nicoletta Colombo, Florence Didier, Maurizio D’Incalci, Domenica Lorusso, Fedro Alessandro Peccatori, Network of Clinicians and Participants (1)

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Using women advocacy groups to enhance knowledge and home management of febrile convulsion amongst mothers in a rural community of Sokoto State, Nigeria by Oche Mansur Oche, Oloche Ben Onankpa

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Reconceptualizing Anti-LGBT Hate Crimes as Burdening Expression and Association: A Case for Expanding Federal Hate Crime Legislation to Include Gender Identity and Sexual Orientati... by Jordan Blair Woods

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What Really Matters to Survivors of Acute Type A Aortic Dissection—A Survey of Patient-Reported Outcomes in the Dutch National Aortic Dissection Advocacy Group by Jennifer S. Breel, Eline S. de Klerk, Magnus Strypet, Frederiek de Heer, Henning Hermanns, Markus W. Hollmann, Susanne Eberl

“…Our aim was to assess the health-related quality of life of TAAAD survivors. (2) Methods: An anonymized, Dutch language, web-based survey was sent out to all of the participants of the 2022 Annual Meeting of the Dutch National Aortic Dissection (DNAD) advocacy group via their own representatives. The survey was divided into five sections: patient information, global satisfaction, surgery, including complications, and the recovery period. (3) Results: Ninety members of the DNAD group attended the meeting. …”
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Forming a support group for people affected by inflammatory bowel disease by Swarup N, Nayak S, Lee J, Pai Raikar S, Hou D, Sockalingam S, Lee KJ

Subjects: “…Patient advocacy groups…”
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STUDIES ON THE MANAGEMENT ISSUES IN THE GUESTHOUSES by Petrică ŞTEFAN, Sorin BIBICIOIU, Silviu GHEORGHE

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Preeclampsia – will Orphan Drug Status facilitate innovative biological therapies? by Sinuhe eHahn

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Risk and safety considerations of genome edited crops: Expert opinion by Rim Lassoued, Diego Maximiliano Macall, Stuart J. Smyth, Peter W.B. Phillips, Hayley Hesseln

Subjects: “…Advocacy groups, agricultural biotechnology…”
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