Making the most of routine data in palliative care research--a case study analysis of linked hospital and mortality data on cancer and heart failure patients in Scotland and Oxford... by Hanratty, B, Goldacre, M, Griffith, M, Whitehead, M, Capewell, S

“…End-of-life researchers have been using the high-quality linked data from cancer registries for many years. This paper explores the value of a less well-known resource for palliative care research: linked mortality and hospital activity data. …”

Spectrum of gastrointestinal malignancies in a rural tertiary care center by Chaitanya Balekuduru, Swarnalatha Pathakota, Rajasekhar Reddy Sivaramannagari, Raja Husne Kalam Sheik, Nanditha Kolluru

“…It emphasises the need for data interpolation across various hospital-based cancer registries.…”
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Cure fraction, modelling and estimating in a population-based cancer survival analysis by Abu Bakar, Mohd Rizam, Salah, Khalid Ali, Ibrahim, Noor Akma, Haron, Kassim

“…The optimal method for monitoring the progress of patient care across the full spectrum of provider settings is through the population-based study of cancer patient survival, which is only possible using data collected by population-based cancer registries. The probability of cure, statistical cure, is defined for a cohort of cancer patients as the percent of patients whose annual death rate equals the death rate of general cancer-free population. …”
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Twinning and the incidence of breast and gynecological cancers (United States). by Neale, R, Purdie, D, Murphy, M, Mineau, G, Bishop, T, Whiteman, D

“…Subjects were selected from the Utah Population Database, which consists of multiple linked datasets including genealogy, births and deaths and cancer registries. We used Poisson regression to calculate relative risks, adjusted for the number of pregnancies and the age of the mother at the birth of first and last children, with singleton mothers as the reference group in each case. …”

Childhood cancer registration in Britain: capture-recapture estimates of completeness of ascertainment. by Kroll, M, Murphy, M, Carpenter, L, Stiller, C

“…Stratified two-source capture-recapture was applied to notifications from general cancer registries (CRs) and specialist clinicians. Variation in notification patterns was assessed by logistic regression. …”

Early-stage Mycosis Fungoides: Epidemiology and Prognosis by Andrew Maguire, Jorge Puelles, Patrick Raboisson, Rajeev Chavda, Sylvie Gabriel, Susan Thornton

“…Data were obtained from 4 key publications and from US cancer registries (Surveillance, Epidemiology and End Results Program; SEER). …”
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Machine learning for predicting survival of colorectal cancer patients by Lucas Buk Cardoso, Vanderlei Cunha Parro, Stela Verzinhasse Peres, Maria Paula Curado, Gisele Aparecida Fernandes, Victor Wünsch Filho, Tatiana Natasha Toporcov

“…Data were extracted from Hospital Based Cancer Registries of São Paulo, which is coordinated by Fundação Oncocentro de São Paulo, containing patients with colorectal cancer from São Paulo state, Brazil, treated between 2000 and 2021. …”
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Adapting an intervention to support young caregivers of cancer survivors: A study protocol by Janet Njelesani, Melinda S. Kavanaugh, Jean Hunleth

“…Stakeholders will be recruited via cancer registries and community partners. Data will be analyzed descriptively using deductive (e.g., CFIR domains) and inductive (e.g., cancer practice settings) approaches. …”
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Adapting an intervention to support young caregivers of cancer survivors: A study protocol. by Janet Njelesani, Melinda S Kavanaugh, Jean Hunleth

“…Stakeholders will be recruited via cancer registries and community partners. Data will be analyzed descriptively using deductive (e.g., CFIR domains) and inductive (e.g., cancer practice settings) approaches.…”
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The Importance of Reporting Clinical and Epidemiological Data in Urology: Local Experiences and Insights from the International Literature by Márió Gajdács

“…Therefore, novel studies in the field of urology are strongly encouraged to maintain and improve the high standard of patient care internationally and to ensure continuous information supply for international datasets on the causative agents of UTIs and cancer registries. The present Editorial aims to highlight some relevant studies published from the field of urology in <i>Medicina</i> over the last several years.…”
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The Prevalence of Prostate Cancer Among Young Men Below 55 Years of Age in Nigeria by Atara Ntekim MD, Ayorinde Folasire MD, Oluwaponmile A. Odukoya BSc, MPH

“…Methods Data on the prevalence of young men <55 years with PCa was extracted from the 2022 report of the prevalence of cancer in Nigeria from 2009 to 2016 based on the records of 15 major Cancer Registries in Nigeria. This was a publication of the Nigerian Ministry of Health and represents the most up to date data. …”
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Cancer incidence in vegetarians: results from the European Prospective Investigation into Cancer and Nutrition (EPIC-Oxford). by Key, T, Appleby, P, Spencer, E, Travis, R, Roddam, A, Allen, N

“…Cancer incidence was followed through nationwide cancer registries. RESULTS: The standardized incidence ratio for all malignant neoplasms for all participants was 72% (95% CI: 69%, 75%). …”

Epidemiological studies of natural sources of radiation and childhood cancer: current challenges and future perspectives by Mazzei-Abba, A, Folly, C, Coste, A, Wakeford, R, Little, M, Raaschou-Nielsen, O, Kendall, G, Hémon, D, Nikkilä, A, Spix, C, Auvinen, A, Spycher, B

“…Large childhood cancer registries, such as those in Great Britain, France and Germany, now allow the conducting of studies that should have sufficient statistical power to detect the effects predicted by standard risk models. …”

Sample, data use and protection in biobanking in Europe: legal issues. by Zika, E, Schulte In den Bäumen, T, Kaye, J, Brand, A, Ibarreta, D

“…The workshop focused on the internal linkage of data and samples stored in a biobank, and the external linkage of biobanks with secondary information resources, such as cancer registries.…”

Cervical cancer burden in Latin America and the Caribbean: where are we? by Pilleron, S, Cabasag, CJ, Ferlay, J, Et al.

“…Population‐based cancer registries are critical in monitoring the elimination initiative.…”

Conducting the Pakistan brain tumour epidemiology study - report on the methodology by Erum Baig , Mashal Murad Shah , Mohammad Hamza Bajwa, Muhammad Usman Khalid , Saad Akhtar Khan , Ummey Hani , Saad bin Anis , Altaf Ali Laghari, Naveed Zaman Akhunzada , Jaleed Ahmed Gilani, Noyan Jawed, Muhammad Faraz Raghib , Sameen Siddiqi, Syed Ather Enam

“…Conclusion: The methods applied in this study are reproducible and can be employed not just to develop more robust brain tumour and other cancer registries but also to study the epidemiology of communicable and non-communicable diseases in resource-limited settings, both locally and globally.  …”
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Dimensions of National Cancer Control Programs in Different Countries: A Scoping Review by Tooba Karimi, Sayyed Morteza Hosseini Shokouh, Ahmad Ameryoun, Mohsen Saffari

“…To find relevant articles, the authors searched keywords, such as National Program of Cancer Registries, Screening, Neoplasms, Cancer, and Cancer Control separately and in combination in databases, including Google Scholar, Scopus, PubMed, and Science Direct. …”
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Epidemiology of cancer‐related weight loss and sarcopenia in the UK and Ireland: incidence, prevalence, and clinical impact by Erin S. Sullivan, Louise E. Daly, Derek G. Power, Aoife M. Ryan

“…Rates of WL and sarcopenia in the population were extrapolated from these data based on incidence and prevalence of each cancer as per national cancer registries. Results We estimated that across Ireland and the UK, 128 892 cancer patients (34%) are affected by WL > 5% annually (121 641 UK; 7251 Ireland) and there are 133 707 annual cases of sarcopenia in cancer patients (35%) (126 265 UK; 7442 Ireland). …”
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Examining the Landscape of Prognostic Factors and Clinical Outcomes for Cancer Control by Meredith Elana Giuliani, Eleni Giannopoulos, Mary Krystyna Gospodarowicz, Michaela Broadhurst, Brian O’Sullivan, Zuzanna Tittenbrun, Sonali Johnson, James Brierley

“…Participants emphasized the need for better global collection of prognostic factors and clinical outcomes data and support for standardized data collection and data exchange practices by cancer registries.…”
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Age and Cohort Trends of Malignant Melanoma in the United States by Stephanie G. Lashway, Robin B. Harris, Leslie V. Farland, Mary Kay O’Rourke, Leslie K. Dennis

“…Poisson regression of cutaneous melanoma cases per population for 1975–2017 from the Surveillance, Epidemiology, and End Results (SEER) cancer registries was used to estimate age adjusted incidence for five-year birth cohorts restricted to Whites, ages 15–84. …”
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