Urinary Liver-Type Fatty Acid Binding Protein, a Biomarker for Disease Progression, Dialysis and Overall Mortality in Chronic Kidney Disease by Nicos Mitsides, Vikram Mitra, Ananya Saha, Shelly Harris, Philip A. Kalra, Sandip Mitra

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Expert Consensus on Assessment for Rehabilitation and Treatment of Musculoskeletal Complications of Hemophilia in China by Hemophilia Treatment Center Collaborative Network of China, China Alliance for Rare Diseases, Hemophilia Subcommittee

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Effect of palbociclib plus endocrine therapy on time to chemotherapy across subgroups of patients with hormone receptor‒positive/human epidermal growth factor receptor 2‒negative a... by Hope S. Rugo, Seock-Ah Im, Anil A. Joy, Yaroslav Shparyk, Janice M. Walshe, Bethany Sleckman, Sherene Loi, Kathy Puyana Theall, Sindy Kim, Xin Huang, Eustratios Bananis, Reshma Mahtani, Richard S. Finn, Véronique Diéras

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For a healthy start in life, children need smoke-free environments: Progress of the Generation Smoke-Free campaign in Belgium since its launch in 2018 by Danielle van Kalmthout

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PROBLEMS AND PRINCIPLES OF OPTIMIZING THE SOCIO-ECONOMIC EFFECT OF THE PERSONAL INCOME TAX IN UKRAINE by I.S. Verkhovod, Y.Y. Hurbyk, Yu. Voronina, S. Izbash, T.M. Sharova

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Moonshots and metastatic disease: the need for a multi-faceted approach when studying atypical responses by Kristine De La Torre, Elly Cohen, Anne Loeser, Marc Hurlbert, on behalf of the Metastatic Breast Cancer Alliance

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Race to the Pole: Matthew Henson, Arctic Explorer by Clara Junker

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Survival and Prognosis Analysis of Bortezomib Based Regimen in Newly Diagnosed Super-aged Multiple Myeloma Patients by ZHAO Fengyi, LI Xin, ZHAN Xiaokai, ZHANG Jiajia, SHEN Man, TANG Ran, FAN Sibin, HUANG Zhongxia

“…A total of 21 (72.41%) patients experienced disease progression (PD) or relapse, and 12 (41.38%) patients died by the final follow-up. …”
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699 Phase 2 trial of brentuximab vedotin (BV) with pembrolizumab (pembro) in patients with metastatic non-small cell lung cancer or metastatic cutaneous melanoma after progression... by Omid Hamid, Sylvia Lee, Hailing Lu, Sunandana Chandra, Yousef Zakharia, Inderjit Mehmi, Marya Chaney, Graham Watson, Patrick Ward, Brian P O’Connor, Robert M Jotte, Amanda Gillespie-Twardy, Jason D Berndt, Kapil Rathi, Scott Knowles, Charles Cowey

SOCIAL POLICY MODERNIZATION: CONTROVERSY OF THE HUMANITARIAN AND FINANCIAL DIMENSIONS by Z. E. Skrynnyk, D. M. Skrynnyk-Myska

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Examining the Relationship Between Environmental Factors and Inpatient Hospital Falls: Protocol for a Mixed Methods Study by Ronald I Shorr, Sherry Ahrentzen, Stephen L Luther, Chad Radwan, Bridget Hahm, Mahshad Kazemzadeh, Slande Alliance, Gail Powell-Cope, Gary M Fischer

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A global neuronopathic gaucher disease registry (GARDIAN): a patient-led initiative by Tanya Collin-Histed, Madeline Stoodley, Kathleen Beusterien, Deborah Elstein, Dena H. Jaffe, Shoshana Revel-Vilk, Elin Haf Davies, the International Gaucher Alliance (IGA)

“…Methods The International Gaucher Alliance led the GARDIAN planning, including governance, scope, stakeholder involvement, platform, and reporting. …”
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Expert Consensus for the Diagnosis and Treatment of Gitelman Syndrome in China (2021) by Rare Diseases Society of Chinese Research Hospital Association, China Alliance for Rare Disease, Beijing Society of Rare Disease Clinical Care and Accessibility, Gitelman Syndrome Consensus Working Group

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Expert Guidelines for the Diagnosis, Treatment, and Management of Mycosis Fungoides in China by Rare Skin Disease Committee of China Alliance for Rare Diseases, National Clinical Research Center for Dermatologic and Immunologic Diseases, Dermatology Branch of China International Exchange and Promotion Association for Medical and Health Care

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Expert Consensus for the Diagnosis and Treatment of Bartter Syndrome in China(2023) by Chinese Society of Rare Diseases, Rare Diseases Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, Bartter Syndrome Consensus Working Group

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Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy by Rare Disease Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, China Expert Group for Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy

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Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy by Rare Disease Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, China Expert Group for Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy

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Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy by Rare Disease Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, China Expert Group for Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy

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ALiCE: A Java-based Grid Computing System by Teo, Yong Meng

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Clinical Practice Guideline on Non-pharmacological Interventions for Older Adults with Cognitive Dysfunction: Physical Activity by China Gerontological Nursing Alliance, Xiang Ya Nursing School (Xiangya Oceanwide Health Management Research Institute of Central South University), Xiangya Hospital Central South University (National Clinical Research Center for Geriatric Disorders), Beijing Hospital (National Center for Gerontology, National Clinical Research Center for Geriatric Disorders), ZENG Xianmei, HU Mingyue, FENG Hui

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