A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

Abstract Background Patients’ stories of their illnesses help bridge the divide between patients and providers, facilitating more humane medical care. Illness narratives have been classified into three types: restitution (expectation of recovery), chaos (suffering and loss), and quest (unexpected po...

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Bibliographic Details
Main Authors: Rebecca C. Spillmann, Allyn McConkie-Rosell, Loren Pena, Yong-Hui Jiang, Undiagnosed Diseases Network, Kelly Schoch, Nicole Walley, Camilla Sanders, Jennifer Sullivan, Stephen R. Hooper, Vandana Shashi
Format: Article
Language:English
Published: BMC 2017-04-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Undiagnosed
Patient narratives
Narrative typology
Undiagnosed diseases network
Online Access:http://link.springer.com/article/10.1186/s13023-017-0623-3

Internet

http://link.springer.com/article/10.1186/s13023-017-0623-3

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