Improving quality of life in patients with rare autoimmune liver diseases by structured peer-delivered support (Q.RARE.LI): study protocol for a transnational effectiveness-implementation hybrid trial

Improving quality of life in patients with rare autoimmune liver diseases by structured peer-delivered support (Q.RARE.LI): study protocol for a transnational effectiveness-implementation hybrid trial

Abstract Background Psychosocial support is a crucial component of adequate rare disease care, but to date psychosocial support needs of this patient population are insufficiently met. Within Q.RARE.LI, we strive to evaluate the effectiveness of a structured, transdiagnostic, and location-independen...

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Bibliographic Details
Main Authors: Natalie Uhlenbusch, Arpinder Bal, Boglárka Balogh, Annika Braun, Anja Geerts, Gideon Hirschfield, Maciej K. Janik, Ansgar W. Lohse, Piotr Milkiewicz, Mária Papp, Carine Poppe, Christoph Schramm, Bernd Löwe
Format: Article
Language:English
Published: BMC 2023-03-01
Series:BMC Psychiatry
Subjects:
Quality of life
Rare diseases
Liver diseases
Effectiveness-implementation hybrid trial
Psychosocial support
Peer-support
Online Access:https://doi.org/10.1186/s12888-023-04669-0

Internet

https://doi.org/10.1186/s12888-023-04669-0

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