Incorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care

Incorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care

Abstract Background Goal Attainment Scaling for Hemophilia (GOAL‐Hēm) is a novel, hemophilia‐specific, validated patient engagement tool and patient‐reported outcome instrument. Objective We evaluated the degree to which the language of GOAL‐Hēm was patient‐centric and the content valuable and relev...

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Bibliographic Details
Main Authors: Jonathan C. Roberts, Michael Recht, Sarah E. Gonzales, Justin Stanley, Michael Denne, Jorge Caicedo, Kenneth Rockwood
Format: Article
Language:English
Published: Elsevier 2022-01-01
Series:Research and Practice in Thrombosis and Haemostasis
Subjects:
Caregiver
focus group
goal
hemophilia
patient engagement
patient reported outcome measure
Online Access:https://doi.org/10.1002/rth2.12655

Internet

https://doi.org/10.1002/rth2.12655

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