Caregiver burden in Bardet-Biedl syndrome: findings from the CARE-BBS study

Caregiver burden in Bardet-Biedl syndrome: findings from the CARE-BBS study

Abstract Background Bardet-Biedl syndrome (BBS) is a rare, genetically heterogeneous obesity syndrome associated with hyperphagia. Given the early onset of BBS symptoms in childhood and multifaceted complications, this study aimed to quantify the caregiver burden associated with BBS. Methods A cross...

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Bibliographic Details
Main Authors: Elizabeth Forsythe, Usha G. Mallya, Min Yang, Caroline Huber, Mary Lynn Cala, Alexandra Greatsinger, Ella Hagopian, Jeremy Pomeroy, Andrea M. Haqq
Format: Article
Language:English
Published: BMC 2023-07-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Bardet-Biedl syndrome
Caregiver burden
Hyperphagia
Obesity
Personal strain
Work productivity
Online Access:https://doi.org/10.1186/s13023-023-02692-8

Internet

https://doi.org/10.1186/s13023-023-02692-8

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