Development of a Disease-Specific Health-Related Quality of Life Questionnaire (DTF-QoL) for Patients with Desmoid-Type Fibromatosis

Development of a Disease-Specific Health-Related Quality of Life Questionnaire (DTF-QoL) for Patients with Desmoid-Type Fibromatosis

Sporadic desmoid-type fibromatosis (DTF) is a rare, non-metastasising soft-tissue tumour. Patients can experience a variety of disease-specific issues related to the unpredictable clinical course and aggressiveness of DTF, which negatively impacts health-related quality of life (HRQoL). These DTF-sp...

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Bibliographic Details
Main Authors: Anne-Rose W. Schut, Emma Lidington, Milea J. M. Timbergen, Eugenie Younger, Winette T. A. van der Graaf, Winan J. van Houdt, Johannes J. Bonenkamp, Robin L. Jones, Dirk. J. Grünhagen, Stefan Sleijfer, Cornelis Verhoef, Spyridon Gennatas, Olga Husson
Format: Article
Language:English
Published: MDPI AG 2022-01-01
Series:Cancers
Subjects:
desmoid-type fibromatosis
rare diseases
health-related quality of life
patient-reported outcomes
disease-specific measures
Online Access:https://www.mdpi.com/2072-6694/14/3/709

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https://www.mdpi.com/2072-6694/14/3/709

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