Siblings’ life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study

Siblings’ life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study

Abstract Background The inevitable and progressive loss of independence in Duchenne Muscular Dystrophy (DMD) patients may have an impact on their siblings’ life aspirations. The present cross-sectional case-control study investigated how aspirations differed between brothers and sisters of people wi...

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Bibliographic Details
Main Authors: Carolyn E. Schwartz, Elijah Biletch, Richard B. B. Stuart, Bruce D. Rapkin
Format: Article
Language:English
Published: SpringerOpen 2022-09-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Duchenne muscular dystrophy
Aspirations
Goals
Siblings
Case-control
Mixed methods
Online Access:https://doi.org/10.1186/s41687-022-00501-7

Internet

https://doi.org/10.1186/s41687-022-00501-7

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