A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis
Abstract Background Hereditary transthyretin amyloidosis (ATTRv) is an ultra-rare, life-shortening disease with a high unmet need. This study examined ATTRv caregiver health-related quality of life (HRQoL) and productivity. Methods A cross-sectional online survey, including EQ-5D-3L, Hospital anxiet...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2023-01-01
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| Series: | Orphanet Journal of Rare Diseases |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s13023-022-02601-5 |