Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Background: As children and adolescents with a chronic health condition (CHC) age and transition to adulthood, many will increasingly assume responsibilities for the management of their healthcare. For individuals with CHCs, family members including siblings often provide significant and varied supp...

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Bibliografische gegevens
Hoofdauteurs:	Linda Nguyen, Hanae Davis, Samantha Bellefeuille, Jessica Havens, Susan M. Jack, Briano Di Rezze, Marjolijn Ketelaar, Jan Willem Gorter
Formaat:	Artikel
Taal:	English
Gepubliceerd in:	Frontiers Media S.A. 2021-10-01
Reeks:	Frontiers in Rehabilitation Sciences
Onderwerpen:	chronic health condition siblings qualitative analysis pediatrics family-centered services healthcare management
Online toegang:	https://www.frontiersin.org/articles/10.3389/fresc.2021.724589/full

Gelijkaardige items

Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition
door: Nguyen Linda, et al.
Gepubliceerd in: (2021-09-01)

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review
door: Susan Jack, et al.
Gepubliceerd in: (2021-07-01)

The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development
door: Verschuren Olaf, et al.
Gepubliceerd in: (2009-09-01)

Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A
door: Linda Nguyen, et al.
Gepubliceerd in: (2018-01-01)

Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom
door: Linda Nguyen, et al.
Gepubliceerd in: (2022-11-01)

The TRUST Study—TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus
door: Simran Heera, et al.
Gepubliceerd in: (2024-07-01)

Sibling Abuse: Definition, Causes and Differences between Sibling Relationship with Sibling Abuse
door: Esra Işık, et al.
Gepubliceerd in: (2016-03-01)

CONGRUENCE BETWEEN SIBLING RELATIONSHIP AND PARENTING PRACTICES ACROSS OLDER AND YOUNGER SIBLINGS
door: Şule SELÇUK, et al.
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The use of the Rotterdam Transition Profile: 10 years in review
door: Zhang-Jiang Sofía, et al.
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A Pilot Study of Younger Sibling Adaptation: Contributions of Individual Variables, Daily Stress, Interparental Conflict and Older Sibling’s Variables
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Sibling Violence
door: Nathan H. Perkins, et al.
Gepubliceerd in: (2020-01-01)

Siblings in Greek families: raising a child with disabilities
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Gepubliceerd in: (2011-02-01)

“Bullying in Incognito Mode”: The evolution of sibling bullying
door: Suhas Chandran, et al.
Gepubliceerd in: (2019-01-01)

Sibling gender dynamics and childhood stunting in Ghana
door: Peter Annor Mensah, et al.
Gepubliceerd in: (2024-12-01)

Sibling Violence and Position in Sibling Dyad in a Sample of Adolescents: How Does It Relate to Self-Esteem?
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A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations
door: Lin Li, et al.
Gepubliceerd in: (2025-02-01)

LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy
door: Verschuren Olaf, et al.
Gepubliceerd in: (2010-11-01)

Critically Examining the Person–Environment Relationship and Implications of Intersectionality for Participation in Children's Rehabilitation Services
door: Meaghan Reitzel, et al.
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Explaining Differences Between Sibling Relationships in Schizophrenia and Nonclinical Sibling Relationships
door: Léa Plessis, et al.
Gepubliceerd in: (2020-04-01)

Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care
door: Lin Li, et al.
Gepubliceerd in: (2024-01-01)

CANADIAN EARLY ADOLESCENTS’ SELF-DISCLOSURE TO SIBLINGS AND BEST FRIENDS
door: Brynheld Martinez, et al.
Gepubliceerd in: (2013-04-01)

Perspectives of Children and Youth With Disabilities and Special Needs Regarding Their Experiences in Inclusive Education: A Meta-Aggregative Review
door: Tithi Paul, et al.
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Application of Microhaplotypes in Sibling Kinship Testing
door: Xuan TANG, Dan WEN, Chu-dong WANG, Ru-yi XU, Hong-tao JIA, Jie-nan LI, Bai-yi-la ZHALAGA
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Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities
door: Annalisa Levante, et al.
Gepubliceerd in: (2023-01-01)

Conflict management in adult sibling relationships: Differences in interpersonal power, sibling influence, and conflict tactic use among sibling types
door: Mary E. Donato, et al.
Gepubliceerd in: (2017-10-01)

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada
door: Linda Nguyen, et al.
Gepubliceerd in: (2023-12-01)

Experiences of adult siblings of individuals with autism spectrum disorder in Singapore
door: Yip, Jiamin
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Family Sibling Effect and Executives’ Corporate Social Behavior
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Siblings of Adults with Learning Disabilities: An Empirical Study
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Children’s Grief and Creativity: The Experience of Losing a Sibling
door: Marcela Lança de Andrade, et al.
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The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
door: Wei Ling Chin, et al.
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Infant siblings and the investigation of autism risk factors
door: Newschaffer Craig J, et al.
Gepubliceerd in: (2012-04-01)

Does Policy Impact Equitable Access to Services? A Critical Discourse Analysis of Discharge Policies in Paediatric Rehabilitation
door: Meaghan Reitzel, et al.
Gepubliceerd in: (2022-09-01)

Siblings as a Context for Positive Development: Closeness, Communication, and Well-Being
door: Samantha LeBouef, et al.
Gepubliceerd in: (2021-07-01)

Cherubism in siblings: A case report
door: Sarda D, et al.
Gepubliceerd in: (2007-03-01)

HUBUNGAN ANTARA SIBLING RIVALRY DENGAN STRES PADA ANAK
door: Tenny Yanuari, et al.
Gepubliceerd in: (2011-08-01)

Sibling bullying reported by emerging adults: Profiling the prevalence, roles, and forms in a cross-country investigation
door: Kristen Cvancara, et al.
Gepubliceerd in: (2024-07-01)

Siblings’ experiences of having a brother or sister with an eating disorder
door: A. Heneghan, et al.
Gepubliceerd in: (2022-06-01)

The sibling experience: growing up with a trans sibling
door: Eleanor Parker, et al.
Gepubliceerd in: (2021-04-01)

Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
door: Freeman Matthew, et al.
Gepubliceerd in: (2018-08-01)