Patients’ knowledge, preferences, and perspectives about data protection and data control: an exploratory survey

Patients’ knowledge, preferences, and perspectives about data protection and data control: an exploratory survey

Background: In the European Union, the General Data Protection Regulation (GDPR) plays a central role in the complex health research legal framework. It aims to protect the fundamental right to the protection of individuals’ personal data, while allowing the free movement of such data. However, it h...

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Bibliographic Details
Main Authors: Teodora Lalova-Spinks, Robbe Saesen, Mitchell Silva, Jan Geissler, Iryna Shakhnenko, Jennifer Catherine Camaradou, Isabelle Huys
Format: Article
Language:English
Published: Frontiers Media S.A. 2024-02-01
Series:Frontiers in Pharmacology
Subjects:
GDPR
patient empowerment
data control
data altruism
health research
clinical trials
Online Access:https://www.frontiersin.org/articles/10.3389/fphar.2023.1280173/full

Internet

https://www.frontiersin.org/articles/10.3389/fphar.2023.1280173/full

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