Delineating family needs in the transition from hospital to home for children with medical complexity: part 1, a meta-aggregation of qualitative studies

Abstract Background Advances in diagnostic and therapeutic interventions for rare diseases result in greater survival rates, with on the flipside an expanding group of children with medical complexity (CMC). When CMC leave the protective hospital environment to be cared for at home, their parents fa...

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Bibliographic Details
Main Authors: L. van de Riet, M. W. Alsem, E. C. van der Leest, F. S. van Etten-Jamaludin, J. M. Maaskant, J. B. M. van Woensel, C. D. van Karnebeek
Format: Article
Language:English
Published: BMC 2023-12-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Online Access:https://doi.org/10.1186/s13023-023-02942-9