Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

Abstract Background The outlook for patients with metastatic synovial sarcoma (mSS) is poor. Better understanding of patient experience in this setting, beyond clinical measures, may guide improvements in management. Validated patient-reported outcome (PRO) instruments specific to many types of canc...

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Bibliographic Details
Main Authors: Laurie Eliason, Laura Grant, Anya Francis, Anna Cardellino, Ken Culver, Sant P. Chawla, Rob Arbuckle, Shibani Pokras
Format: Article
Language:English
Published: SpringerOpen 2022-05-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Qualitative interviews
Synovial sarcoma
Metastatic
PRO
HRQoL
Symptoms
Online Access:https://doi.org/10.1186/s41687-022-00450-1

Internet

https://doi.org/10.1186/s41687-022-00450-1

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