Development and evaluation of a virtual patient-centered outcomes research training program for the cystic fibrosis community

Plain English Summary Cystic fibrosis (CF) is a rare, genetic disease; meaning people are born with the disease and have it throughout their lives. CF is a multi-system disease, primarily affecting the respiratory system. Daily care for people with CF (PwCF) includes taking many medications and brea...

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Bibliographic Details
Main Authors: Emily M. Godfrey, Erin K. Thayer, Laura Mentch, Traci M. Kazmerski, Georgia Brown, Molly Pam, Morhaf Al Achkar
Format: Article
Language:English
Published: BMC 2021-12-01
Series:Research Involvement and Engagement
Subjects:
Online Access:https://doi.org/10.1186/s40900-021-00328-4