Using a digital patient powered research network to identify outcomes of importance to patients with multiple myeloma

Abstract Background Social media platforms give patients a voice by allowing them to discuss their health and connect with others. These unfiltered and genuine reports offer direct access to what matters most to patients. Exploring the patient-reported outcomes discussed in these platforms reveal cl...

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Bibliographic Details
Main Authors: Katharine S. Gries, John Fastenau
Format: Article
Language:English
Published: SpringerOpen 2020-09-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Online Access:http://link.springer.com/article/10.1186/s41687-020-00242-5