A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada

A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada

Abstract Background The highly sensitive nature of genomic and associated clinical data, coupled with the consent-related vulnerabilities of children together accentuate ethical, legal and social issues (ELSI) concerning data sharing. The Key Implications of Data Sharing (KIDS) framework was therefo...

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Bibliographic Details
Main Authors: Vasiliki Rahimzadeh, Gillian Bartlett, Bartha Maria Knoppers
Format: Article
Language:English
Published: BMC 2021-06-01
Series:BMC Medical Ethics
Subjects:
Genomics
Data sharing
Pediatrics
Data protection
Ethics review
Delphi
Online Access:https://doi.org/10.1186/s12910-021-00635-1

Internet

https://doi.org/10.1186/s12910-021-00635-1

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