Quality of life and wishes in Duchenne Muscular Dystrophy: the perception of children and their parents

Quality of life and wishes in Duchenne Muscular Dystrophy: the perception of children and their parents

Objective: To assess the agreement between children with Duchenne Muscular Dystrophy (DMD) and their parents regarding the perception of quality of life (QOL) and the wishes expressed by children. Methods: The study involved 14 patients (median age = 9.9 yearsold) followed up in Sarah Rehabilitation...

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Bibliographic Details
Main Authors: Benito Arias Martínez, Marta Badia Corbella, Cruiff Emerson Pinto da Silva, Egmar Longo Araújo de Melo, Maria Teresa Moreno Valdés
Format: Article
Language:Portuguese
Published: Universidade de Fortaleza 2009-12-01
Series:Revista Brasileira em Promoção da Saúde
Subjects:
Muscular Dystrophy
Duchenne
Quality of life
wishes
agreement
Online Access:http://www.unifor.br/images/pdfs/rbps/artigo4_2009.4.pdf

Internet

http://www.unifor.br/images/pdfs/rbps/artigo4_2009.4.pdf

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