Sickle Cell Transplantation Evaluation of Long-term and Late Effects Registry (STELLAR) to Compare Long-term Outcomes After Hematopoietic Cell Transplantation to Those in Siblings Without Sickle Cell Disease and in Nontransplanted Individuals With Sickle Cell Disease: Design and Feasibility Study

BackgroundThere are sparse data on the long-term and late effects of hematopoietic cell transplantation (HCT) for sickle cell disease (SCD). ObjectiveThis study aims to establish an international registry of long-term outcomes post-HCT for SCD and demonstrate the...

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Main Authors: Lakshmanan Krishnamurti, Staci D Arnold, Ann Haight, Allistair Abraham, Gregory MT Guilcher, Tami John, Nitya Bakshi, Shalini Shenoy, Karen Syrjala, Paul L Martin, Sonali Chaudhury, Gretchen Eames, Olusola Festus Olowoselu, Matthew Hsieh, Josu De La Fuente, Kimberly A Kasow, Elizabeth Stenger, Anne Mertens, Fuad El-Rassi, Peter Lane, Bronwen E Shaw, Lillian Meacham, David Archer
Format: Article
Language:English
Published: JMIR Publications 2022-07-01
Series:JMIR Research Protocols
Online Access:https://www.researchprotocols.org/2022/7/e36780