Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set

Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set

Abstract Background Patient‐relevant health outcomes for persons with hemophilia should be identified and prioritized to optimize and individualize care for persons with hemophilia. Therefore, an international group of persons with hemophilia and multidisciplinary health care providers set out to id...

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Bibliographic Details
Main Authors: Erna C. vanBalen, Brian O'Mahony, Marjon H. Cnossen, Gerard Dolan, Victor S. Blanchette, Kathelijn Fischer, Deborah Gue, Jamie O'Hara, Alfonso Iorio, Shannon Jackson, Barbara A. Konkle, Diane J. Nugent, Donna Coffin, Mark W. Skinner, Cees Smit, Alok Srivastava, Fred vanEenennaam, Johanna G. van derBom, Samantha C. Gouw
Format: Article
Language:English
Published: Elsevier 2021-05-01
Series:Research and Practice in Thrombosis and Haemostasis
Subjects:
delivery of health care
health care
hemophilia A
hemophilia B
outcome assessment
patient‐reported outcome measures
Online Access:https://doi.org/10.1002/rth2.12488

Internet

https://doi.org/10.1002/rth2.12488

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