Preferences for coordinated care for rare diseases: discrete choice experiment

Preferences for coordinated care for rare diseases: discrete choice experiment

Abstract Background Evidence suggests that coordination of care for people affected by rare diseases is poor. In order to improve the way that care is coordinated it is necessary to understand the preferences of people affected by these conditions, and providers. The aim of this study was to examine...

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Bibliographic Details
Main Authors: Stephen Morris, Holly Walton, Amy Simpson, Kerry Leeson-Beevers, Lara Bloom, Amy Hunter, Angus I. G. Ramsay, Naomi J. Fulop, Lyn S. Chitty, Joe Kai, Alastair G. Sutcliffe, Maria Kokocinska, Larissa Kerecuk, Christine A. Taylor, Pei Li Ng
Format: Article
Language:English
Published: BMC 2024-09-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare diseases
Rare conditions
Care coordination
Discrete choice experiment
Preferences
Online Access:https://doi.org/10.1186/s13023-024-03353-0

Internet

https://doi.org/10.1186/s13023-024-03353-0

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