Understanding what drives genetic study participation: Perspectives of patients, carers, and relatives

Understanding what drives genetic study participation: Perspectives of patients, carers, and relatives

Abstract Genetic research's growing importance in understanding pulmonary arterial hypertension (PAH) and developing effective treatments prompted the RAPID‐PAH study. This study sought feedback from stakeholders who participated in two genomic studies to enhance genetic study delivery and clin...

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Bibliographic Details
Main Authors: Emilia M. Swietlik, Michaela Fay, Nicholas W. Morrell
Format: Article
Language:English
Published: Wiley 2024-01-01
Series:Pulmonary Circulation
Subjects:
genetic research
informed consent
motivations and barriers to participation
pulmonary arterial hypertension
return of individual genetic results
Online Access:https://doi.org/10.1002/pul2.12346

Internet

https://doi.org/10.1002/pul2.12346

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