Participant-reported personal utility of genetic testing for Parkinson’s disease and interest in clinical trial participation

Participant-reported personal utility of genetic testing for Parkinson’s disease and interest in clinical trial participation

Abstract Genetic testing for Parkinson’s disease (PD) is infrequently performed due to perceptions of low utility. We investigated the personal utility in PD GENEration and how results lead to enrollment in additional research studies. Participants (n = 972) underwent genetic testing, results disclo...

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Bibliographic Details
Main Authors: Hannah Oas, Lola Cook, Tae-Hwi Schwantes-An, Laurence E. Walsh, Anne-Marie Wills, Ignacio F. Mata, Martha A. Nance, James C. Beck, Anna Naito, Karen Marder, Roy N. Alcalay, Jennifer Verbrugge
Format: Article
Language:English
Published: Nature Portfolio 2024-10-01
Series:npj Parkinson's Disease
Online Access:https://doi.org/10.1038/s41531-024-00805-z

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https://doi.org/10.1038/s41531-024-00805-z

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