The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups
BackgroundPatients struggling with rare diseases may face challenges caused by care providers being unfamiliar with their condition. The life span of people with rare diseases may be the same as that of healthy people, but their quality of life is different. Patients with chr...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2022-08-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2022/8/e39172 |