Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities

The purpose of this study was to explore the role of parents in multidisciplinary collaboration on behalf of their preschool-aged children with disabilities from the theoretical perspective of empowerment. The study employed a multiple-case study design, including twenty-six individual and two focus...

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Main Author: David Lansing Cameron
Format: Article
Language:English
Published: Stockholm University Press 2018-07-01
Series:Scandinavian Journal of Disability Research
Subjects:
Online Access:https://www.sjdr.se/articles/65
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author David Lansing Cameron
author_facet David Lansing Cameron
author_sort David Lansing Cameron
collection DOAJ
description The purpose of this study was to explore the role of parents in multidisciplinary collaboration on behalf of their preschool-aged children with disabilities from the theoretical perspective of empowerment. The study employed a multiple-case study design, including twenty-six individual and two focus group interviews with parents and professionals supporting six children and their families. Three interconnected themes emerged from the analysis. First, parents struggled with navigating a system that was perceived as rigid and cumbersome. Second, parents often found themselves in the position of having to ‘police’ the professionals involved in supporting them. Third, parents expressed a desire to ‘just be parents’ and relinquish a degree of control to professionals. Findings highlight central dilemmas associated with the goal and process of empowerment in the provision of social, educational, and health-related support.
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spelling doaj.art-3ce38106cbf9409c851b1461ea37f4142023-08-02T03:15:42ZengStockholm University PressScandinavian Journal of Disability Research1501-74191745-30112018-07-0120127728510.16993/sjdr.65501Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with DisabilitiesDavid Lansing Cameron0University of Agder, KristiansandThe purpose of this study was to explore the role of parents in multidisciplinary collaboration on behalf of their preschool-aged children with disabilities from the theoretical perspective of empowerment. The study employed a multiple-case study design, including twenty-six individual and two focus group interviews with parents and professionals supporting six children and their families. Three interconnected themes emerged from the analysis. First, parents struggled with navigating a system that was perceived as rigid and cumbersome. Second, parents often found themselves in the position of having to ‘police’ the professionals involved in supporting them. Third, parents expressed a desire to ‘just be parents’ and relinquish a degree of control to professionals. Findings highlight central dilemmas associated with the goal and process of empowerment in the provision of social, educational, and health-related support.https://www.sjdr.se/articles/65CollaborationDisabilityParentsEmpowermentPreschool
spellingShingle David Lansing Cameron
Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
Scandinavian Journal of Disability Research
Collaboration
Disability
Parents
Empowerment
Preschool
title Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
title_full Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
title_fullStr Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
title_full_unstemmed Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
title_short Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
title_sort barriers to parental empowerment in the context of multidisciplinary collaboration on behalf of preschool children with disabilities
topic Collaboration
Disability
Parents
Empowerment
Preschool
url https://www.sjdr.se/articles/65
work_keys_str_mv AT davidlansingcameron barrierstoparentalempowermentinthecontextofmultidisciplinarycollaborationonbehalfofpreschoolchildrenwithdisabilities