“If relatives inherited the gene, they should inherit the data.” Bringing the family into the room where bioethics happens

Biological kin share up to half of their genetic material, including predisposition to disease. Thus, variants of clinical significance identified in each individual’s genome can implicate an exponential number of relatives at potential risk. This has renewed the dilemma over family access to resear...

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Bibliographic Details
Main Authors: Deborah R. Gordon, Barbara A. Koenig
Format: Article
Language:English
Published: Taylor & Francis Group 2022-01-01
Series:New Genetics and Society
Subjects:
Online Access:http://dx.doi.org/10.1080/14636778.2021.2007065